Sometime in February our daughter called to tell us her eye doctor had diagnosed her with detached retinas in both eyes. She needed surgery. Her left eye was worse than the right eye, and they considered it an emergency. She had no center vision in her left eye.
They made some referrals, and the referral made another referral, so that she ended going to a university hospital several hours from their home. Long story short, they did the surgery on the first eye the first week of March, and the second one two weeks later. They put a “buckle” in both eyes, but fortunately she didn’t need the “bubbles,” which is a very long and arduous recovery. Almost immediately she could see better, but it’s still a very long healing process. Initially she couldn’t lift anything over five pounds. She has been unable to drive since the first surgery, as her vision is so blurry it is akin to not wearing glasses before the surgery (she’s very nearsighted, which is most likely the risk factor causing the detachment). She is also warned not to strain her eyes.
She’s in college, has a family with two elementary aged children, and she still can’t drive.
What does this have to do with my metastatic breast cancer journey? Or traveling in an Airstream as full-timers? It connects to my story because we never know what might pop up along the way that can change the trajectory of our path. It could be a new lesion, or side-effect of the medication. It could be a break-down in something Airstream related. We just have to be willing to be flexible and go with the flow. That doesn’t come easy for a planner, but God’s still working on me!
The patient becomes the caregiver.
We were in Florida when we received the call, and we immediately started thinking about how we could help her. Should we leave immediately and fly up, or take the Airstream, or wait and see? We had plans to go back to Texas visiting capitol buildings along the way, attend some rallies (which were already paid for in non-refundable payments), check on the new house build, and stay in Texas until June or later depending on the progress of our house. How might this change those well-made plans? Sometimes, the cancer patient becomes the caregiver to someone in their family or circle of friends. It’s what we do. It’s called life.
We considered taking the trailer as we didn’t know how long she would need us, but the RV parks in this area have yet to turn on their water, due to freezing temperatures. Her husband decided to take off work until the beginning of April, so that gave us time to attend the rallies and find a place to settle in Texas. We booked flights and headed north to help her out once we got the Airstream settled in at a gated RV park in Montgomery. Tim had a work visit with a church, and it’s not too far from her, so that helped defray some of the costs. We really miss our home!
Aside, we are happy to have made the decision to purchase the Airstream Classic. It has a multiplex system that allows us to turn the A/C or Heat on and off as needed. It doesn’t have an “auto” feature (yet), so we have been checking the internal temperature and turning it on as needed.
Hanging out with Dad before he flies home.
We originally planned on flying back to Houston yesterday, but Elizabeth still doesn’t have new glasses so she can barely see. She needs a ride to the hospital for her follow-up consult now that Anthony is working. Tim has a biopsy scheduled for a spot on his nose that he has put off for way longer than needed, so he went back on the original flight. Getting him there was a bit of drama in itself, as we had a rental car from the airport three hours away and one of us would need a ride. Tim found a local guy who transports to the airport, and they had a nice chat all the way there. I stayed behind for another week and I’ll return the car when I get there. Logistics!
I was fortunate to get the exact same flight schedule at no additional charge. I can change the flight again if necessary, but that would require missing medicine (I didn’t bring enough to go past Monday), and rescheduling appointments at MD Anderson. At this point we are praying Elizabeth will have glasses on Friday so she can get used to them over the weekend and then I can head home the day after Easter. I took her to her local eye doctor who gave her a prescription. She will be able to see 20-20 out of her right eye with new glasses. That’s progress! Her left eye still has a ways to go.
Tomorrow we pack up the kids in the car rental and head to Iowa City for Elizabeth’s follow-up appointment with her surgeon; we hope to get her new glasses there. Iowa City has a same-day eyeglasses store in town that can make her a cheap, temporary pair until her vision settles and she can get a new more permanent prescription. That should be about three to six months from now, but at least she will be able to drive!
I’m sitting in her community college lobby as I type this, feeling a bit reminiscent of my own college days. I’m watching young students come and go while waiting for Elizabeth to attend two of her classes so I can once again be her seeing eye dog and chauffeur for lunch. I went with her to Bible study last week, which she attends on Wednesdays, and one of the students who goes to it just walked by and acknowledged me, asking if I would be there again today, saying that they enjoyed having me. That was a good feeling as I thought I added some depth to the room with some of my comments, but you never know how students will react.
Looking at illustrations in poetry books for children, in our hotel lobby.
I have enjoyed helping with her children’s literature class!
As I have been reading her book chapters and poetry aloud, typing what she dictates, and helping her finish assignments, I sometimes have to turn the screen away so she does’t squint and try to read what’s on the page. While her attitude is positive, she keeps saying, “I wish I could see,” usually with a laugh of frustration.
We never know how much we use our sight until we no longer have it. Don’t take it for granted. Holy Week, leading up to Easter, is a great time to remember to thank God every day for the ability to see, hear, walk, talk, and everything else He has given you for free. Especially remember the sacrifice of His one and only Son. His arms are stretched out for you. Can you see?
À la prochaine…hasta la próxima vez…until next time!
Things you might hear while waiting for MDACC nurses to call your name for chemo… (Old cowboy wearing boots and hat, on his phone with a stereotypical Texas drawl):
“I have a .22 and I was wondering if you have a night vision and scope, and can you put it on there?” 😂😂
Long chemo day. One bag down, one to go. Whenever I go more than three (Trastuzumab) or six (Pertuzumab) weeks without treatment, we have to reload. That means one bag is an hour instead of thirty minutes and the second bag is ninety minutes instead of thirty. It’s been a while since I had to reload, so I kinda forgot how long it was. The infusion time is in addition to accessing the port, flushing, heparin and de-accessing the port, with a prayer that we get good blood return or additional processes have to take place. My appointment was scheduled for 12:30. I’m still here at 3:13, and just started on the ninety minute bag.
Before lunch I also saw my oncologist and his nurse, who were particularly chatty today, about books, family stuff, Netflix series and they were eager to hear about our Airstream trip. And of course we discussed medical updates, time for scans, yada yada. Honestly, I enjoy seeing them. It’s like visiting with old friends every time I go in. Today is the first time I have seen their faces without masks for over three years. (They took them off inside the room.) That was an especially nice change of pace!
Before the doc was the blood draw, which took a while to get in. This first visit to the building came with an interesting surprise as well. Funny how much can change in just a few weeks; we were greeted by large, green construction fences all along the north(?) wall. They are expanding their handicapped parking next to the building. They should have done that all along. Apparently the patients were complaining about having to walk too far from the current handicapped parking. I’m happy. More spaces for me as well.
As if that isn’t enough, we got up early this morning to take our son to the airport and then Tim went to the dermatologist (he needs another biopsy) while I sat in Panera Bread and read my book and ate breakfast. We decided to drive together, which Tim might be regretting now that he has decided to sit here in the room with me. Usually he drops me off and picks me up, a habit we never changed after the pandemic.
❤️❤️ He decided to sit with me. ❤️❤️
This evening, I’m taking two of my grandkids to dinner while Tim will be in a church meeting. We will wrap up the day saying hello to our overnight guests, who are staying at our house while we all go to the Texas General Assembly meetings this weekend.
Whew. 🥴
Funny how you can have a whole week without much to do, and then multiple things seem to all converge on the same day. Has that ever happened to you, or is it just me? That’s the way of life sometimes. Keeps us on our toes, for sure. I’m just grateful to the good Lord for giving me the energy to do it all, tenacity to keep going, and a passion for enjoying life.
Might be time for a nap. I do have my pillow and blanket while getting infused, after all. 🤪🤩😁🥴
He gives strength to the weary and increases the power of the weak.
The LORD is my strength and my shield; my heart trusts in him, and he helps me. My heart leaps for joy, and with my song I praise him.”
Isaiah 40:29; Psalm 28:7 (NIV)
À la prochaine…hasta la próxima vez…until next time!
Some of my faithful followers (or follower as it may be; there may only be one of you 🤪😂), are wondering about the whole surgery and recovery I just went through. I’ve been updating on Facebook, but here it is in one place for those of you who don’t see my posts or are curious on the chronology of events.
Tuesday, June 7. Surgery #1. SURGICAL LAPAROSCOPY WITH PARTIAL COLECTOMY, REMOVAL OF TERMINAL ILEUM, AND ILEOCOLOSTOMY. That’s a long way of saying I had surgery due to a large polyp in my colon. It was not cancerous, thank God! But I was glad we did it. I was in a lot of pain, even to the point of massive belly spasms if I was touched with the slightest feather.
Wednesday, June 8. Surgery #2 (Emergency Surgery). I had a sudden drop in hemoglobin and hypotension overnight. My blood pressure was 70/40 at one point. They started giving me bags of blood. I have O-negative blood, which primarily requires O-negative even though I’m a universal donor. In an emergency I can receive O-positive, which they did at least once due to a blood shortage. Dr. You wrote an exception that said, “Patient O Rh Neg transfused with O Rh Pos blood due to temporary unavailability of Rh compatible units.” People were asking if they could donate blood in my name, but she didn’t think that would matter. I could have sworn I saw an AB bag come through, but I must have dreamed that one. 😂🤪
They gave me about five bags total over night. It didn’t correct the problem, so I went in for a second, emergency surgery. Dr. You told Tim he might want to be here, so he came to the hospital and waited while I was in surgery. Nobody kept him informed as it was an emergency and they didn’t have him on a text string. Surgery was successful, and Dr. You said she was glad she had gone back in. They found a large hematoma with a hemorrhage, in the lining below my belly button. This is likely why I had all the belly pain.
She cauterized the bleed, made a bigger incision to remove the hematoma near the pelvis, and believed she had fixed the problem. I had two more bags after surgery for a total of seven. Plus a bag of plasma. Fortunately they were on top of it. Their quick response prevented what could have been a very serious or even fatal situation. This set my recovery time back a bit because of the back-to-back anesthesia, but we were back on course.
She’s not really sure why I had the hemorrhage. She said there are a lot of tiny blood vessels in that area. I have lots of scarring from my DIEP flap, so that could have contributed.
Thursday. June 9. They moved me to PACU, the step-down unit from ICU. The nurses are so attentive here. The room is small and uncomfortable for Tim as we can’t really talk very easily. I will be here for several days before going to a regular room. I have four incisions on my belly, with the largest being near my pelvis where they removed the hematoma. I’m so thankful there are no drain tubes! Just dissolvable stitches with steristrips.
Friday. June 10. I’m still on a liquid diet. Ice chips are my friend and I’ve been living on popsicles and jello. Honestly if I never see another jello again, I could live with that. I still have a catheter. I can barely move. Tim has come to visit me every day so far. It’s a long drive, and he has to navigate the whole parking system. It’s a pain, but he does it anyway. The nurses are so helpful, as well as the techs. They draw my blood regularly and bring me medicine for the pain. It’s tolerable, but I’m getting hungry for some real food.
Feeling a little down emotionally, due to some family related issues. There is a lot going on with our kids, Tim’s mom, his jobs, and of course … this. Being in the hospital makes it hard, because I can’t really do anything to help. I feel so helpless and Tim is taking on all the burdens. I’m looking forward to getting out.
A very cheerful Physical Therapist came to visit me late in the day. She was way too cheery for me today. I just want to eat 🙄. She had me doing some leg exercises and walked me all around the building. She’s trying to convince me to use a walker, which I did, reluctantly. I didn’t get tired as easily, but I really don’t like the walker. I feel like an old lady using it. It’s hard to listen to someone with a bubbly personality when you just want to crawl in bed and get under the covers. I told my doctor about that when he came by later and he chuckled.
Saturday, June 11. Day five in the hospital. We got up early, changed my gown, and moved me to the chair. Wow. We take so much for granted, like a simple move from the bed to the chair. It’s much harder than it looks. I had some trouble getting deep breaths due to the belly pain and it’s restricting. I’m doing my breathing exercises, and I ordered breakfast. Hot tea and a popsicle. Still on a clear liquid diet and waiting for the . My face is super puffy from all the weight gain. I’m hoping it comes off!
Tim came to the room and we worked on our research project for about an hour. There was a fire drill that lasted for at least ten or fifteen minutes, and had us wondering whether we would need to leave the building. Crazy…
Did my breathing treatment, meds, took another walk, then they finally moved me to a regular room. At least the window is bigger and I can see more than a parking garage. I see the blue sky and a rooftop of another MD Anderson building that has some type of garden up there. Intriguing. I’m walking better but still very tender in the belly. I’ll be watching church online tomorrow.
I am having difficulty breathing, so they did a chest x-ray. The tech came to my room and did it right there in my bed. It was done in 2 minutes. Amazing technology. Result: “The bilateral basilar atelectasis or pneumonia and small pleural effusions.” I saw the picture when he took it, and I thought it looked like half of my lung was missing. Basically I was full of fluid. My lungs were concerning, so I’m trying to do the breathing exercises more regularly. They want me to do ten per hour, but I sleep a lot so I know I’m not doing nearly enough. So. Tired. Fluid. Everywhere. I was gaining weight and it wasn’t coming off. So hard to breathe. So hard to stay positive. So hard to stay motivated to do the breathing exercises. They want me up and moving, so I’m walking around the nurse’s station 5-6 times per day. It takes a LOT of effort, but I know the adage, “no pain, no gain.”
Sunday, June 12. Wish I could go to church, but online will have to suffice. They removed my catheter which was a huge help. (They did that right about the time Tim started preaching Shh don’t tell him ). Still having trouble breathing, and my belly is swollen with so much fluid. So they did a CT scan of my abdomen. That’s the worse one I’ve ever experienced. Drinking the contrast nearly made me sick, and I had trouble laying flat and breathing. I could not hold my breath for the whole ten count, but they said it was okay. They did find lots of inflammation, including my gall bladder. At this point they are thinking it will settle down as the fluid begins to pass.
Tim came to visit me after church. He came bearing gifts and cards from the church family. A beautiful prayer blanket was knitted by Mrs. Gonzalez, who prays over every stitch as she makes them. It’s beautiful and meaningful as well. I am reminded I am covered in prayer whenever it is near me.
By the end of the day, I was passing liquid poop. Tim gave me a high five at five. I’ve never been so happy to poop. Then they let me take a shower and wash my hair. Yes, I did it myself with just a little help from hubby. He does deserve much credit. He is such a trooper. I love him and appreciate him so much. It’s not easy getting in and out of the buildings here. Amazing how much more human you feel after a shower.
I was up walking six times today including the CT adventure. I’m still on a clear liquid diet until tomorrow at least. I’m hoping I get some soft food like mashed potatoes or oatmeal sometime tomorrow. That would make my day. I haven’t been extremely hungry because of the the inflammation, but mashed potatoes sound really good right now.
Monday, June 13. Day 7 in the hospital. I did not feel well today, so I wasn’t feeling like posting. I was disappointed when the doctor said the poop was only one step. I still needed to pass gas. Still on a clear liquid diet for another day. Just a general overall yucky feeling. Smells, alcohol prep, even lovely perfumes were upsetting. I think I just need some real food in my belly. It’s been more than one week since I’ve had any real food.
The nurses change shifts every 12 hours, at 7:00 AM and PM. They always look at my incisions and share a report with the next nurse at the shift change. Most of the nurses are pretty good, attentive and helpful, but one nurse has a very thick dialect and I can’t understand most of what she says. I’m sure it is frustrating for her, but just as much for me. I was glad when her shift was up. The nurses and techs come in a variety of ages, ethnicities, and levels of experience.
Everyone who comes in wants to look at my belly. I’m thinking of charging admission. 😂
Tim wasn’t able to visit me today because of multiple meetings and work commitments, so I was not only feeling yucky physically, but a little emotionally drained as well. I was “tucked in” by my night nurse, who is older than some of the others. I have her had for a few days now. She cradled my head in her hands, kissed me on the forehead, and said, “I love you.” She will never know how much that meant to me, to hear those words just before going to bed. Nurses do not get enough credit for all they do.
Tuesday, June 14. Today is much better! I woke up before the sun when the lady from vascular access came to work on my port. She was interesting, with a spiked hairdo and fun conversation. We had a nice chat about Hall & Oates, amongst other bands from my era which she has seen. She knew who Charle DeChant was, also known as “Mr. Casual,” which was impressive to me. He plays saxophone for Hall & Oates, and I got to know him when he played in our band in Orlando from time to time. Love to hear him play!
Anyway, she was here because they are having trouble getting blood return from my port. It flushes fine, meaning it can receive fluids, but it must go both ways or there is probably a clot preventing the return. The needle was scheduled for removal tomorrow anyway, so she removed the needle from my port and inserted a new one. Still no blood return. TPA (medicine) was inserted to break down any potential blood clots or fibrous something or other. Wait three hours and try again.
Used the bathroom (this is becoming a regular occurrence now) then went for a walk. Three laps this time. I am very slow but I keep my head up and so far no falls.
My doctor came in around 5:00 AM and said he was bumping up my diet…FINALLY!! He had to staff it with the team to write the order, so I waited and waited. I could envision eggs, oatmeal, toast, and maybe even a banana. It took three hours for the order to go through, but I finally got to order my real food. Starting slow. Just a few bites of each. Just a flavor change. Even though the eggs were cold, it was a nice change of pace. If I do well on this diet, I might get to go home tomorrow.
So the Hall & Oates lady went home for the day, and another vascular access specialist came up and tried again. Still no blood return. Second dose of TPA was inserted, then we waited another three hours. No blood draws or medicine in the port during TPA. My port has had a beating this week. I think it is starting to rebel. In the meantime, I got flowers delivered to my room from the Parkgate Church family, and I talked to some friends. That cheered me up.
But the BEST news of the day came when I learned that our #6 Jedi was born at 8:14 AM! His birthday is June 14, 2022, exactly 13 months to the day after his big sister Mikayla. Jaxson weighs 5 lbs 11 oz, is 17 3/4in and head is 13in. She was 36 weeks, 4 days. He’s a tiny thing! Mommy and baby are doing well, and I can’t wait to see them both. This was taken right after birth, at the beginning of the “golden hour.”
Wednesday, June 15.
I managed to do well on a full diet for a day, so they discharged me today. Funny, I only had two meals really. Breakfast and then spaghetti for a late lunch. I only ate a few bites as I still feel very, very full.
We are staying at the RV for about a week, as I have some follow-up appointments downtown and we didn’t want to go too far away from the hospital for a few days. Just the drive to the RV made me sick to my stomach. I threw up, but once that was over, I started feeling much better.
Our RV looks like a hospital, with a wedge on my bed, breathing treatments on my nightstand, and multiple bottles of pain killers on the bathroom sink. I’m only taking them as needed. Fortunately my pain is under control.
Watermelon tastes really good. I’m trying to keep my fluids up, but my belly still feels really full. I have yet to pass gas, but I still have several bouts of diarrhea per day. Slowly feeling better, day by day. I slept 12 hours after I got home, without any pokes or prods in between.
Thursday, June 16. Today was a full day. I started a class called “Active Living After Cancer.” I thought this would be a good time to do it since I need to start getting active again after my surgery. It’s a virtual class on Zoom, and they are sending a package with all kinds of goodies in it. They wanted us to “walk” for 2 minutes in class, but when they turned on the video it was more like Zumba. 🤪😳 I couldn’t even do 2 minutes. I have a goal to work up to.
Our son and daughter-in-law surprised us with a quick visit to introduce us to our newest grand baby, Jaxson Timothy West. They have been waiting to make the announcement because they wanted Tim to hear firsthand that they named the baby after him. What an honor and a blessing!
He was released early from the hospital because there was a gas leak outside the building. Fortunately, he had already passed his hearing test and car seat test. Apparently the moms were all gathering in the lobby because they could smell propane. They started discharging them all, including little Jaxson and Bree.
I am still providing supervision for a couple of LMFTs who are working toward licensure, so I had two sessions this afternoon. They were very accommodating and understanding of my surgery and recovery. I was pretty tired after that, but it felt good to do something productive and helpful. What a full day!
The church has decided to bring us meals for a few days. That was such a blessing! We had kids meals from Olive Garden tonight. I was a little concerned about the spaghetti after yesterday’s fiasco, but I mostly ate the noodles and only a little sauce. I ate one shrimp. Only about three or four bites and I was finished. No problems keeping it down. I’m sure the other day was due to transporting home, and of course Olive Garden has much better food anyway. The kids meals were the perfect size. Tim ate the rest of mine and we had grapes left over for a snack.
Friday, June 17. I farted!
Friday, June 17. The picture captioned above says it all. 😂😂😂 I finally started passing gas, and while there was no “plop, plop, fizz, fizz,” it was such a relief! My system is taking a while to figure out the new structure, but it’s finally getting it. Our church friends brought us caprese chicken with rice, fruit salad, bagged salad, and homemade focaccia bread. It was nice to have company and chat for a few minutes. This was the first time I ate more than just a few bites. Nearly a whole meal!
Saturday, June 18. Getting stronger every day. But it’s slow going. I feel like I’m about 5% better each day, on a scale of 100%. I still haven’t left the RV, so my walking consists of walking from the living room to the bedroom and back (about 20 steps). We’ll get there! Tim turned on the golf, which is always good for a nice nap. 😂
We had a wonderful meal of comfort food brought to us for dinner, including potato soup and club crackers. Again, nice to hang out with friends for a few minutes as well. Those crackers lasted me a few days, and they came in handy whenever I started feeling a little hungry or queasy on a long drive. They also brought a small carrot cake. Oh my! Let me say this was absolutely delicious, although I still can’t handle a lot of sweets.
Sunday, June 19. Father’s Day! Typically we would have a day out, and enjoy some time together as a couple, maybe even with some kids. Today would not be a typical Father’s Day. I would stay in bed and watch church online while Tim was preaching. We did finally venture out of the RV together and went for a dinner at Panera Bread. We didn’t want to go anywhere that would take too much effort to walk in. I had mac and cheese, with plenty left over for dinner tomorrow. I thought I had bought him a card, but honestly I couldn’t find it anywhere. Oh well, there’s always next year. OR, we can celebrate the Australian Father’s Day in September. 🥰😁
First dinner out after surgery. Happy Father’s Day sweetheart!
Well, that’s the update from surgery to my first meal out. The following week I continued to get stronger. We finally got to move back to our home in Conroe on Wednesday. I weighed myself on my home scale, and I’m down about ten pounds from what I was prior to surgery. I can see it in my face. I’ll take it!
Tim left on Thursday for Arkansas to visit his mom who has been ill, and then on to Kansas City to a friend’s wedding. I couldn’t go, but I’m okay. I had several doctor’s appointments which various people drove me to until I could drive myself, in addition to treatment. I had my follow-up with my surgeon (Dr. You) on Friday June 24th, and she discharged me from surgery! Yay! I’m officially free, just continuing with recovery. No restrictions, except I can’t lift for another 4 weeks. She said by July 4th I should be feeling pretty normal.
I drove myself for the first time, to run some errands yesterday (Saturday), and the steristrips finally fell off later today as well. The incisions look really good. I think they should be fairly invisible within a few months.
That brings us to today, and the end of this very lengthy blog. Tim drove all the way home from Kansas City last night. He stopped a couple of times to sleep, so we will probably go to bed early. We watched church online and we are going to go see an Elvis movie this afternoon.
I know I’ve said it a bunch of times, but I am so thankful for all the prayers, cards, texts, calls, messages, and gifts from my friends and family. I have a great prayer support network, who prayed for me even when I didn’t have the strength to pray for myself. I am looking forward to continuing to grow stronger, to the point that at the end of July we have a bike trip planned. More on that later!
If you’ve been keeping up with my blog, you know that yesterday I went in for a procedure to remove a large polyp in my colon. At first it looked like the polyp was about 2 cm, but after further digging and evaluating it is estimated between 6-7 cm. It goes around a corner where the colon folds. Apparently my body is good at growing things inside. 😪 I wish I could transfer my luck to the lottery!
There are only 1-2 doctors in the whole world who do this procedure. They send challenging cases to this doctor because he is very good at what he does. MD Anderson is noted to be best in the world. I trust them. Dr. Ge has a 95% success rate for removing difficult polyps, and he was quite confident going in that he would be able to remove it, with minimal risks.
He explained the reasons for staying on a liquid diet after the procedure, to avoid tearing or lacerations, etc. We don’t want all that “stuff” to end up inside. I wasn’t looking forward to the recovery time.
The reason this polyp is a challenge is due to the fold in the colon. It’s on the far right side of my body, and hard to access. Apparently, there is a lot of scar tissue in addition to some markers around this polyp, so it appears this one has been worked on before. It has been likely growing for a long time. It is probably a continuation or regrowth of the polyp I had the very first time I had a colonoscopy eight years ago, which my previous doctor had “removed.” Dr. Ge said he would not have let this go five years between colonoscopies. Lesson learned!
I was under general anesthesia and had a very nice nap. I couldn’t tell you what I dreamt. I was having a nice chat with the anesthesia assistant about the blizzard of ’78 in southern Ohio (he was born in Dayton, just 30 minutes from my home town). The next thing I knew I was waking up and it was all over. Dr. Ge waited until I was more awake to talk to me, and then he went over 15 pages which document the procedure with pictures. It’s pretty cool, really, what they can do with those cameras and toys.
Anyway, he showed me the steps he took to try and remove it. He tried several methods and techniques as well as some expensive tools that other gastroenterologists don’t have access to. Long story short, after two and a half hours he realized it was not going to happen. He removed some pieces of it, and a couple of other polyps as well which they sent to pathology. I should get those results back in about a week.
I apologized for messing up his success rate. 😪 😫 He chuckled. He said this is the reason he gets all the tough cases. But he admitted he had never seen anything like this in all his years of working. (He looks young, so I’m not sure how long that is 🤪.) It was definitely something that he wasn’t expecting. Who knows, I may end up in some medical journal because of it.
The next step is go back to the colorectal surgeon for another consult. There was some talk about whether it is worth doing the surgery due to my current metastatic breast cancer diagnosis. I was a little offended by that, to be honest, as I believe I have a lot of years left! I don’t want this thing to turn into colon cancer. That’s how my grandfather died. But what are the risks of that?
Here’s what I found on Healthline. According to the Colon Cancer Alliance, the risk of developing colon cancer is one in 20. Doctors screen for this type of cancer by looking for polyps in the colon and rectum. Like most forms of cancer, early detection can make a big difference in survival rates. If identified at the local stage, the five-year survival rate is 90 percent. However, if identified at a later stage when the cancer has spread, the five-year survival rate is 12 percent. PSA: Get your colonoscopy!
So much to consider. If we do it, we will schedule surgery to have part of my colon removed. Stay tuned and I’ll keep you posted. The upside? I get to eat today with no restrictions.
We never give up. Our bodies are gradually dying, but we ourselves are being made stronger each day. These little troubles are getting us ready for an eternal glory that will make all our troubles seem like nothing. Things that are seen don’t last forever, but things that are not seen are eternal. This is why we keep our minds on the things that cannot be seen.
Someone asked me at church on Sunday for an update on my colon situation. I was on her prayer list, and she wanted to know when my procedure is. I am always impressed by the saints who pray for me on a daily basis. I know they don’t do it for that reason, but I’m sure there will be some extra jewels in their crowns when they get to Heaven.
It’s scheduled for noon tomorrow (Wednesday). I have to check-in at 11:00. At least we’ll miss the morning rush hour. They will access my port, and then I’ll get a nice long nap! Tim will drive me there and back. Apparently they don’t want me to get a DUI 😳.
On a walk through the Houston Botanic Garden, yesterday.
It seems like a lifetime ago when I found out I have a polyp in my colon that needs to be removed. Previous blogs have addressed the problem, consults, and where we are today. Dr. Ge didn’t bring me in for another consult; he just scheduled the procedure. I’m always grateful when I can avoid a trip to the downtown center.
It’s called a FLEXIBLE COLONOSCOPY WITH ENDOSCOPIC MUCOSAL RESECTION. It’s a little more than a colonoscopy, but less than major surgery. If they can’t get the whole polyp, they may have to do surgery to remove part of my colon. Let’s pray they get the whole thing! I have to stay in the Houston area for the first 48 hours, just in case there are problems. We have our RV down here, so that’s convenient. Praying for no problems!
The procedure will take about three hours. That seems like a long time, especially compared to the regular colonoscopies. We should be done just in time for the afternoon rush hour. I guess we can’t have it both ways. 🤷♀️ *sigh*
I am prepping…again. This time is different. I’ll have the beef consommé, the Miralax/ Gatorade cocktail, and a side of Dulcolax, s’il vous plait. Still waiting for it to “kick in” at this writing.
No food. Only clear liquids all day today (hence the consommé), as well as the next couple of days after the procedure. Then I can slowly ramp up to a normal diet by day six. I do have some popsicles and jello!
Tim conveniently had a meeting tonight, so he gets to miss all the fun 🤪😁. He will be feeding himself for a few days, so I stocked the freezer with some Aussie meat pies and Texas steaks. He’ll be fine.
My daughter introduced me to Dr. Who years ago. We watched the whole series. The knowledge has come in handy from time to time, as I now know what a Tardis is, amongst other things. It was hard to imagine Dr. Who as Queen Elizabeth’s husband in “The Crown” series, but there he was! I kept imagining he would find a red phone booth somewhere in London and poof!
Sometimes I wish I could be transported into the future when technology can eliminate the need for doctors. But for now, it’s the life I live. One specialist after another. I’ve kind of lost count, but I have many doctors following me, and they all have their niche reasons. It’s a full-time job being my own personal assistant. Fortunately, I have a calendar to keep me straight. Most of the time.
Dr. You is a colorectal surgeon at MD Anderson. She comes to The Woodlands once or twice a week, so I agreed to see her. My oncologist referred me to her when I told him about the polyp in my colon. I liked Dr. Knapp (see previous post), but it doesn’t hurt to have a second opinion.
As it turns out, MD Anderson has a team of specialists who can remove challenging polyps laparoscopically. This can help me to avoid surgical removal of part of my colon. That’s the hope anyway! Dr. You referred me to Dr. Gee. (It’s not pronounced “Jee” like I thought. The G is hard as in “goose.”) Anyway, he will perform a special procedure to get the polyp out of there.
It’s scheduled for Wednesday, April 27th. Downtown. Fortunately we will already be downtown so I won’t have to fight quite as much traffic. There’s a bit more prep than a regular colonoscopy, including a Covid test the previous day, followed up by a week-long liquid diet ramped up to normal.
The upside is, I might lose some weight in the process. One can hope! I’ll keep you posted on the outcome.
Not everything I do medically is because of breast cancer, but it certainly has an impact.
I saw Dr. Knapps, a colorectal surgeon, for a consult today. Don’t worry if you don’t know what that is. The benefits specialist at my insurance company didn’t know what it is either. (I’m not sure he spoke English, to be honest.) But, it’s covered, so that’s all I wanted to know.
I was referred by my gastroenterologist, who did my colonoscopy.
He reviewed Dr. Maheshwari’s reports, looked at the path report and determined we are not in an emergency state. Whew! I knew that, but it’s good to hear him say it. The pathology report on the piece of the polyp already removed shows it is benign. But they have to take it all out to ensure there isn’t something else lurking underneath. Since it’s in the fold, I was referred to a surgeon.
The good news is, he can attempt to do it with another colonoscopy. (Yay! More prep 🙄.) Since he’s a surgeon, he can clip more aggressively to remove the whole polyp. If he accidentally clips my colon in the process, he can repair it. My gastroenterologist can’t do that, so they are more careful when dealing with the folds of the colon. He said I can do that in a couple of months or so. If that doesn’t take care of it, he may remove a section of my colon. I prefer the former option, so I’m praying that works.
In the meantime, I got a referral from my oncologist to see one of the MD Anderson colorectal surgeons for a second opinion. I’ll see her on the 24th, and then I can make my decision. If she says the same thing, I’ll most likely go back to Dr. Knapps. I liked him, and Tim liked him, so there’s that. Another benefit…He can do it locally rather than downtown Houston.
I prepped on Thursday (I already blogged about that fun process 🙄), and I had a colonoscopy yesterday 😳. The doctor also did an endoscopy (a scan of the stomach and esophagus.) More on the results in a minute. But first…
Public Service Announcement. If you are over 50, and you have never gotten a colonoscopy, NOW is the time to do it. The prep is awful. I can attest to that! It’s 24 hours of liquid diet including a total colon cleanse. I imagine this is probably why most people don’t get one. When will I have the time to do that? They ask. Or, they think it’s too expensive (insurance will cover it 👍.) And, you can’t drive yourself home. You can get a DUI for that. Trade off with someone you know. Drive them to get their colonoscopy.
Regardless of the inconvenience, a colonoscopy is the bestway to prevent colon cancer. You won’t feel any symptoms until you have cancer and it is so far along it may or may not be treatable. You don’t know what’s lurking in your system until it has been scoped. It is much better to prevent cancer than to deal with it. Believe me, I know about dealing with cancer!
If you have a family history of colon cancer, you should probably start getting a colonoscopy even before you turn 50. Maybe as early as 40, they are now recommending. My grandfather died from colon cancer, my mother had lots of polyps, and there are others in the family who have had bowel resections as well as other colon related issues. I make sure when it’s time, I get my body checked for this one.
I waited until I was 50. The doctor found a huge polyp during my first colonoscopy, and another one a year later. We don’t know how long the big one had been growing, but fortunately we caught it at the “pre-cancerous” stage. If I had waited, I could have added colon cancer to my litany of medical problems.
After a clear scan, he finally gave me the 5-year approval, which landed us to the present. The last thing I remember before the procedure was the nurse saying, “have a nice time at the beach,” and then I woke up.
Results. I would like to say I am totally free from polyps, or any other colon related issues. However, he found another large polyp in my colon 😫, as well as some spots in the esophagus that he will continue to watch. He took several biopsies, which will come back in a week or ten days. He was unable to remove the polyp as it is in a colon fold, so he referred me to a surgeon to remove that section of my colon. Yep, I’m having yet another body part removed soon. They can do it with a small incision, apparently.
I don’t know what all of this means as of yet, but I guess I’ll know more when I see the surgeon. He wants to wait until the biopsies come back so we know more on what we are dealing with. I’m not worried, but I do wish my family history was a bit less tarnished with cancer. It’s a horrible disease.
My husband is one of the lucky ones. He has clean scans, and gets to repeat in five or ten years. I pray you are also one of the lucky ones.
I get to repeat this again in another year. Oh the joy…🙄🙄
As I sit here waiting for chemo, I was thinking back over the events of the past couple of weeks. In the month of May we have experienced the joy of a new grand baby held in our arms (#5), time with two of our grands as they visited the dentist, a long ride on the Harley through the Ozarks, fun and many card games with friends, a trip to Dallas for maintenance repairs on the Airstream, an escape room with our friends who are moving to Florida, a nest full of baby Carolina wrens on our back porch to also make me smile (5 as well), Top Golf and dinners with friends from our Harley Chapter, my hubby’s new clean-shaven face, and the ever-present cancer scans.
Life is an adventure!
CT and Bone Scans. Scans are usually a half-day occurrence. In spite of the seeming gravity of the situation, this has become a bit routine. Clear liquid fast for a few hours. Access port. Draw some blood. Drink the contrast tea. Inject the nuclear tracer for the bones. Wait a bit while drinking the tea. CT scan of chest, abdomen and pelvis (the contrast gives you a very warm feeling and makes you think you are going to wet yourself 😜). Go eat lunch and wait another hour or so for the tracer to get to the bones. Whole body bone scan (that contrast does not make you feel like you will wet yourself).
Wait for results. (I usually forget to look; it is that routine.)
Admittedly, I was a little nervous when I saw these results show up in MyChart last night. The bones are fine, with no progression. But the CT showed a couple of new lesions in the lung. They are very tiny (about 2 and 4 mm) but there nonetheless. I knew I would see the doctor today so I waited to ask. No need to panic and waste time worrying. I’ve learned that lesson the hard way. But it does make one pause and think for a moment.
What happens next? When progression occurs, there is often talk about different treatment protocols. Metastatic breast cancer is not curable but it is treatable, until there is no longer a treatment option available. Right now, I’m on the first line of treatment for triple positive breast cancer. I don’t want to change. I don’t like change. I’m perfectly happy with the status quo. I like this protocol just fine. I know what to expect, and my body tolerates it well. It’s only every three weeks. We are able to travel and enjoy life. Much life. I don’t really notice the effects of treatment. I could handle this for the rest of my life. If this one fails, we have to mark it off the list. I pray this one does not fail.
Before I went to sleep I asked the Lord for nothing to change.
My prayers were answered!
Do not be surprised when the Lord answers prayers. Expect it to happen!
My doctor is great. I can’t say enough positive things about him and his team. The nurses and physician assistant took time to talk to me, small talk as well as answer any questions I had. Long story short, they are not concerned with very small spots like the ones on this scan. They are too small to biopsy. Too small to tell whether they are even cancer. It could be residual effects from the lung infection I had a few weeks ago. No change in treatment. Continue as is, and follow-up with more scans in three months.
My oncologist recalled the first time I came in, nearly five years ago. I had a large mass on my ribcage. Mets were found multiple places throughout my body. He talked about how far we have come since then. He thinks I am a walking miracle, and no less. We chatted a bit more about kids and grandkids, and how easy it is to spoil them when we can send them home.
The question most prominent in my brain was the last to come out of my mouth. Does this mean I’m still stable? Yes! Your body is still stable. That’s what I wanted to hear‼️ ❤️❤️
I praise the LORD for answering my prayers and saving me.
Psalm 118:21
Thank you again prayer warriors, for all your continued prayers. I don’t think I could do this without you! Your prayers are answered every time I step foot here, and every step in between. My mind is at peace, and I know God is taking care of me. I may have a momentary blip in the radar from time to time that makes me ponder, but then I am reminded of God’s goodness, and of you who have me on your daily prayer list. Thank you for your continued perseverance! You encourage me with your constant support. It’s hard to keep at it for so long! Yet, you know this thing could turn any time, and you know that prayer is what keeps it from doing so, and thus you pray.
Thank you!
I started this blog with several memories. In just a couple of weeks we have experienced so much life. I can’t imagine my life being any less full than it already is! It is so full, I sometimes forget to write about it, until some cancer-related incident interrupts me. My body is still stable. I am living with cancer. More importantly…I am living.
“Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.” ~Mark 11:24
My Story
From the time I can remember, “acting as if your prayers had already been answered” was my mantra. Since childhood, visualizing a positive outcome and working toward it was my goal. Once I set my mind in that direction, the fear always dissolved because God was in the plan and I believed.
. My face is super puffy from all the weight gain. I’m hoping it comes off!
). Still having trouble breathing, and my belly is swollen with so much fluid. So they did a CT scan of my abdomen. That’s the worse one I’ve ever experienced. Drinking the contrast nearly made me sick, and I had trouble laying flat and breathing. I could not hold my breath for the whole ten count, but they said it was okay. They did find lots of inflammation, including my gall bladder. At this point they are thinking it will settle down as the fluid begins to pass. 
I’ve never been so happy to poop. 
Then they let me take a shower 
and wash my hair. Yes, I did it myself with just a little help from hubby. He does deserve much credit. He is such a trooper. I love him and appreciate him so much. It’s not easy getting in and out of the buildings here. Amazing how much more human you feel after a shower.
delivered to my room from the Parkgate Church family, and I talked to some friends. That cheered me up.
