Back to Reality

Christmas is over and we are back to reality. I’m sitting here at MD Anderson getting treatment, after seeing my oncologist for the last time this year. I’m looking forward to what 2023 has in store!

I’m so thrilled to be here, SIX years after my diagnosis of metastatic breast cancer. I am so blessed, and I thank my God daily for giving me the strength and life to live. My nurses are always a bit amazed at how many times I have been here for treatment.


Tim and I just returned from our “Hallmark Christmas.” We enjoyed Christmas with four of our grandkids at the beginning of the month since they would not be available on Christmas Day. Our other two have moved out of state, so it was just the two of us this year. To do something different, rather than sitting at home, we decided to go on a trip. It would be our first winter camping trip for this long of a time. It was a blast!

If you are my friend on FaceBook, you’ve seen all the updates. We shared some of our woes and joys in various videos along the way. We demonstrated our “MacGyver” trick to insulating the bottom of the trailer, fixing a flat tire, and other things. The last video has a special message of inspiration from my hubby, also known as “Padre” or “Pastor Tim.” Click here if you want to watch it. You can catch up on all the other videos on my YouTube channel, including a gift to you on my ukulele (I’m still learning).


We knew it was going to be cold, which is what we wanted for Christmas this year, but we couldn’t see the forecast that far into the future. Little did we know a Siberian freeze would be coming to town. 🤪🥶 Temperatures fell to single digits, with wind chills at – 22 (that’s MINUS 22!). Our tanks froze and we crossed our fingers and prayed that nothing was permanently damaged. They thawed out on Christmas Day, and we were able to leave two days later.

Before the miserable freezing weather, we enjoyed small town Christmas as well as Oklahoma City Lights on Broadway. We saw millions of Christmas lights, ate some great food, spent time with friends, watched movies, played games, and even put together a Christmas puzzle. And yes, we got our White Christmas! In spite of the cold, our heater worked well and we slept soundly.

Our Airstream was so pretty all decorated, with snow in the foreground.

We maintained traditions like attending a Christmas Eve candlelight service followed by a Chinese dinner, and opening presents on Christmas morning. We also read a devotional book together daily for the entire Advent season. It was one of the best I’ve read, with lots of historical references and food for thought. The emphasis was on Emmanuel, God with us. The Incarnation. I felt closer to Jesus with each turn of the page.

We left on December 9th and didn’t go home until the 27th; it was quite an adventure! It was a wonderful time camping in our Airstream travel trailer. Along with the normal gear were our Christmas decorations, lights, and of course the presents. It felt so much like Christmas the whole time we were there. The staff at the KOA (just outside of Oklahoma City) were so friendly, encouraging, and knew us by name by the time we were heading out. I gave them one of my children’s books as we were leaving.


We learned a lot of lessons on this trip. We learned a lot about winter camping that we didn’t already know. We learned that we are more resilient than we could have believed. No matter how much life throws our way, we will persevere. Our perspective on our limits has changed. For one, 30 degrees doesn’t sound as cold as it used to! Sometimes we may go through a test to determine how much our bodies (and minds) can handle. I am grateful to have the Lord and my husband beside me, and a body that keeps going in spite of my cancer diagnosis.


À la prochaine…hasta la próxima vez…until next time!

Quick Trip Between Treatments

One of our Florida friends has cancer. Not the same kind as me, but his has also metastasized. Many of you know him. We were planning a trip to Florida in December and wanted to spend a few weeks, but when a friend goes home on palliative care, you do what you can to encourage them. NOW.

Tim had some free rental days, so we rented a nice car and drove to Florida. We looked at my oncology schedule, and found about a week when we could go between treatments. We got home late last night.


We might not have recognized him had we run into him on the street. The long beard that matched ZZ Top has been replaced by a clean shaven face, thanks to several rounds of chemo and radiation to the neck and head. I believe this is the first time we have ever seen him without facial hair. His appetite has wained. He is thinner, by about 100 pounds. His voice sounds different. He walks a little slower, but he is not bedridden.

In spite of his many physical changes, we can see he’s still the same person. He loves to play games, and he even sat at the table for several hours while the boys fought battles during Axis and Allies. (I went to dinner with the ladies.) After the game, we all reminisced. We went to church together. Played in a band together. Traveled to other countries and did rock concerts. He was our tour guide because of his impeccable memory regarding historical facts. He told a joke (I was the brunt). We all laughed. It was a great night to see our friends and hopefully provide them with a bit of a distraction from every day concerns, anticipatory grief, doctors’ visits, major life-changing decisions, and so forth.

We’ve been there. We are there. We know what it’s like to be told bad news. I am so fortunate the Lord lead me to MD Anderson and a team of specialists who found treatment to keep my body alive years longer than they expected. Not everyone’s body responds to treatment the way mine has. Not all cancers respond the same way. Sometimes treatment options run out. Many times they do. I’m praying our friends find doctors who are willing to try something else to keep going.

While I was talking to his wife, I was reminded of a song I recently heard by Dolly Parton and four other women. It’s a hope for the future where “pink is just another color.” The fact is, the researchers are closer to a cure than they ever have been. That’s what I’m praying for! If you’d like to watch the music video, here’s the link. Have some tissues handy.

We saw lots of friends on this trip, in spite of the brevity. You know who good friends are when they drop what they are doing to see you while you are in town. I wish we could have seen more! Maybe next time sick friends will be feeling better and we’ll have more time to get around town to see the rest.

I just did bloodwork, and now I’m waiting for my chemo appointment. They will infuse Zometa for my bones today, in addition to the normal Herceptin and Perjeta protocol. My oncologist got the blessing from my bone specialist. We try to plan our trips in the three weeks between visits. Tim and I often sit in a café, sip hot tea or Diet Pepsi, eat lunch together, work on projects (mostly separate ones), and bounce ideas off of each other for our next trip to wherever.


It was a quick trip all the way to Florida and back, and I’m so glad we went. We have decided not to question ourselves when the Holy Spirit leads us in a particular direction. Marker on the dry-erase wall calendar has been erased and replaced multiple times. We have learned to be flexible. Cancer does that to you. The process of going through it teaches you so much about living life to the fullest, being flexible, and spending time with the ones you live.

Now, go give your loved ones a hug. ❤️❤️


À la prochaine…hasta la próxima vez…until next time!

National Metastatic Breast Cancer Awareness Day

Check out the Metavivor.org website for more details.

October 13. Today is the one day out of October when we raise awareness for Stage 4, Metastatic Breast Cancer (MBC). MBC is diagnosed when the cancer has spread to other parts of the body besides the breast or lymph nodes. It is currently not curable, although many women live years with it, due to the advances in treatment.

Metastatic breast cancer is most often found in bones, liver, lungs, and brain. (I’ve had it in all of the above.) I wore my metavivor shirt today to help people see the elephant in the pink room. Depending on the sub-type of breast cancer, treatment may take many different forms. For me, I take a pill daily and get an infusion of Perjeta and Herceptin every three weeks. You can read my blog about whether treatment will ever end if you want to know more.

Last night we had an excellent presentation by Dr. Oke at MD Anderson, about the advances in treatment for MBC. It’s the first time I’ve heard doctors discuss the very real possibility of a CURE. That’s right… New technologies and interventions out of NIH in Bethesda, Maryland are moving in this possible direction. 

It is a complex process called cellular immunotherapy, which involves isolating, removing, and reprogramming T-cells, then injecting them back into the body so they will fight the cancer. MD Anderson can harvest the cells, but NIH has been doing it much longer so most of the actual treatment is still done in Maryland. 

My body is currently stable, so there’s no reason for me to try any of it. BUT, it would be great to know I could if I needed to.

It is extremely interesting.  

I also learned that they have recently developed medicine (pill form) for brain metastasis. Since about 2020. I know! 🤯🤯 My only option was radiation or gamma knife when I had brain metastasis. The Gamma Knife worked, and I haven’t had any progression since. But if I did, I am SO happy to hear they have other options that are much less invasive. 

Please keep our doctors and researchers in your prayers. Dr. Oke said we have probably seen more advances in the past 2 years than we have in many more of the previous years. It’s amazing how far they have come, but we still have a ways to go.


À la prochaine…hasta la próxima vez…until next time!

Free Veggies for MBC

At MD Anderson The Woodlands  chemo center, following treatment on Thursday Oct. 6th. Every three weeks!

Support goes a long way in the healing process. Companies and individuals love to give us stuff and pray for us. It’s for a good cause! Metastatic breast cancer (MBC) is one of the leading causes of death for women, and there is currently no cure for it. The state of Virginia recently offered an incentive for the person who finds a cure. More companies are jumping on the bandwagon to help us until they do. I feel loved and supported by so many of you, as well as some companies with great programs. I recently joined some who offer free stuff for those of us battling this disease.

My latest is sponsored by a national group called “Unite for HER.” Their focus is on wellness from all angles. I believe I posted some pictures of the big box full of goodies they sent me just for joining. It’s legit! I have 6 “squares” in my National Extended Wellness Passport, which can be used in any combination of services including integrative therapies, whole food nutrition, and fitness. They also offer lots of free retreats, consultations, classes and more through their “All Access Pass.” My passport will renew each year in January, with six more squares!

I signed up for my first Farmbox Direct and I got my first box yesterday! It cost me 2 squares for 6 weeks of boxes. They deliver seasonal, farm fresh vegetables directly to my home. Fortunately it fell right between our travel dates, so we won’t miss a delivery. We were so excited to see what they included! Here’s a little video of our reveal.

Veggies Free for Me, Part 1

I was even more thrilled when I discovered what I thought were turnips were actually beets (aka beetroot) 😂😂. Short video explains below, and shows you the full crop. We are so farm ignorant, but I hope to learn more. Maybe I will have my own garden one day.

Name this vegetable 😂😂😂

If you have to live with something like metastatic breast cancer, you might as well enjoy the benefits that come with it. The Lord knows we can use the perks! If you or someone you know has MBC, please comment below and I’ll send you the information on how you can join as well. It’s a great program!


À la prochaine…hasta la próxima vez…until next time!

When Will You Be Done With Treatment?

#chemoday

I get that question a LOT. “When will you be done with treatment?” The typical response inside my head is some quip that goes something like, “when I die,” or “I’m in it for life.” But I know the questioner is sincere and typically doesn’t understand all the ins and outs of my disease. So, I smile and explain why I will never be done with treatment. The protocol is every three weeks for terminal breast cancer.

I may have to change that mantra… 🤩🤩

I saw my oncologist today, and he gave me some potentially good news. He checked with the breast team just before my appointment and asked when this “poor patient” can stop treatment, if ever. After all, in December it will be six years since my diagnosis of metastatic breast cancer, and ten years since my original diagnosis of breast cancer. And I’ve been stable since January 2019.

I was encouraged to hear, HE was asking the question. I thought he assumed, like me, that it was for life.

However, at this time the response remains the same. “We don’t know.” The data doesn’t support stopping treatment as of yet. And we likely won’t have any new data for a very long time. After all, who wants to be part of that study? Stop treatment to see if you are cured, but risk a progression that could be even worse than the time before? Nah, I’ll keep plugging away until they have the data that says otherwise, or until it no longer works (if ever).

BUT, it was encouraging to know my oncologist thinks there could come a day when I will no longer need to come in for treatment. 👍👍❤️❤️❤️ THAT, my friends, is HOPE.

A few other things were discussed in our time together, like when I’m due for my scans and such. I also learned that he is now a full professor. That’s the highest rank at MD Anderson. He is such a humble man. I had to hear that from a nurse, as he would never tell me that himself.

After some laughs and chats with the tech, nurse, and physician assistant, I went back up to the third floor for treatment.

They obliged my request to get in earlier than my 2:45 appointment since I had finished my bloodwork and met with the doctor before 10:00. I haven’t been in a room with a bed for a very long time, so that was also a nice surprise.

Click for Herceptin Drip video.

As soon as my port was accessed, I logged in to my Active Living After Cancer group. This was the last week in a 12-week virtual class. We all “graduated” today, and I will forever remember these ladies. I also found a filter in Zoom I didn’t know existed.👩‍🎓🤪🤪

We plan to get together for some events and lunches to stay connected. Maybe even a monthly “reunion,” to encourage our activity. The leaders have been so encouraging. I have started a personal friendship with one of them, as she is finishing her doctoral degree and we seem to have a lot in common. Her energy is over the moon!

Also while in treatment I was blessed with a text from our daughter-in-law, containing the cutest video of my two youngest grandkids. She caught Mikayla saying she wants to see “NANANANANANA!” She was yelling it over and over. 😂😂😂 And the baby has his rattle socks I gave them, on his hands, rattling them like crazy. I cracked up watching it. ❤️❤️❤️

Treatment was done by 12:15 and I was ready for lunch. I love my nurses! Even with our chats she worked fast and efficiently. I was happy to eat and get home by 1:00. As I am typing this blog, we are on the road again, heading out for another Airstream Adventure!


À la prochaine…hasta la próxima vez…until next time!

Research Fellowship Completed!

Legacy leadership: Influences on pastoral approaches to financial leadership

Timothy B. West, D.Min, and Lucinda C. West, Ph.D.

Yesterday we were sitting on the back porch contemplating some finishing touches. By noon, we hit “enter.” We submitted our final paper to Villanova and our research fellowship is finally finished (YAY!). It was a two year project. We had to pare it down to 24 pages to meet their requirements, which only barely covered all the interesting findings. We will have a few articles to submit to journals after this.

If you remember, we originally planned to look at how pastors from the four money scripts approach financial leadership of their congregations. As it turns out, our sample was largely from one money script (money vigilance), so we had to scrap the idea of comparing groups. In fact, one of the scripts was completely missing from our sample (money status).

We only surveyed Church of God pastors, so it would be interesting to do another survey with multiple denominations to see if the dispersion of money scripts is greater across tribes or if this is a pastoral phenomenon. We think someone in the next cohort might have taken that bait.

We did do a few correlational analyses of the larger sample, but mostly focused on the themes that emerged from the interviews with pastors. We found four basic themes. For the purpose of this project, we highlighted one theme “legacy leadership.” Basically this entails the legacies brought into the equation by money scripts, family of origin, mentors, and pastors as mentors passing on legacies to their congregations. It was very interesting to hear how their families, mentors, and scripts influenced their decision-making as it pertains to finances.

We also found three other themes of financial leadership which were discussed briefly and will be brought out in more detail in our other articles. Those included spiritual leadership, visionary leadership, and practical leadership. Again, it was fascinating to hear how pastors lead finances based on these themes. Once it’s posted in the Villanova archives, we’ll let you know where you can read it.

In our second residency, we were asked by Scott Thumma (a well-known researcher in the church world, and one of the mentors at Villanova) to submit a brief article based on our findings as part of a larger project he is conducting. They are exploring the effects of the pandemic on churches. His project is funded by Lilly Endowment Inc. and conducted by the Hartford Institute for Religion Research at Hartford International University.

This was a side finding in our study, but it was interesting to hear what pastors had to say about the pandemic. Our article just got published on their website, and they paid us a small stipend for the submission. Here’s the link if you’d like to read that one.


It is wonderful to be married to someone who carries the same interests, passions and vision as I have. We want to see the Kingdom of God expand. We love the church world. We want to see pastors succeed and congregations flourish. We both enjoy doing research and are task oriented enough to see it through (even when we get a little tired of the topic).

After we submitted this research project, we asked, “what now?” We decided it’s time for us to relax a bit. I’m still working on my books, and this freed up some time to create illustrations (more on that in another blog). But it probably won’t be long before we are on to the next big project.


À la prochaine…hasta la próxima vez…until next time!

Last Day on Lake Tawakoni

A week on the lake is food for the soul. I could eat like this every day. We’ve taken in a lot on our walks around the park and down by the lake. And for those who may think Tim is all play and no work, here’s the view from our office. He’s in a meeting while I’m typing this. 🤪🤪 We have also been to Panera Bread and McDonald’s, where the WIFI is strong. Nothing is close, as we are way out in the boonies here, so we usually make a day or at least a half-day of it when we go into town.

I’m listening to Contemporary Christian music on Pandora. I just heard a new song by Sara Groves. Have you heard it?

I’m not sure if it’s the environment, or the medicine they have me on for this neuropathy study, but my feeling is coming back in my hands and legs. I still have some tingling in my fingers, but when we walk I don’t feel like my legs are as heavy. My balance is also much better. I have a total of 60 days on the medicine for the study. Once it’s gone, they said the neuropathy shouldn’t come back after that! Fingers crossed and prayers going up for that as well!

We will be here one more night, then we take the rig to DFW Airstream for some warranty work before we head home. And, our awning needs replacing (hence the umbrella), so they will also take care of it when we drop it off. Unfortunately the awning is not under warranty due to user error 🙄. That happened on our very first road trip to Florida. Lesson learned.

We’ll leave the Airstream at the dealership for two weeks as we will be back up this way for an Airstream Rally at the end of September, and the Balloon Fiesta the following week. That will save us pulling it down and back from Houston to Dallas. Bonus!

Sunset on Lake Tawakoni

À la prochaine…hasta la próxima vez…until next time!

Lake Tawakoni

After chemo we hooked up the Airstream and headed north to Lake Tawakoni (Tah-WAH-kuh-nee). It’s near Point Texas, east of Dallas, about 3.5 hours from our house. Looks like a nice, quiet place to sit for a week. Tim will be working from the trailer, or the nearest Panera Bread, and I will be sipping tea while doing whatever it is that I do. 🤪🤪

The hook-up went much smoother than we expected. We timed it, and from start to finish we were ready to leave the storage unit in less than 45 minutes. That included hosing down the rig and putting air in the tires, which we don’t always do. This storage facility has everything from a dump station to air and water.

One tank of gas made it all the way up, but we didn’t get as good of gas mileage as we had hoped. This truck does tow better than the Ram, though, which is why we traded in the first place.

Luckily, a spot was open right on the lake. It’s idyllic. Big trees will block the heat and separate us from other guests. We have a great view of the sunset. Tim backed into the camping spot like a pro. 🤩🤩 We had to use our levelers for the first time in a while.

Just after sunset.

Unhitching the trailer and setting up camp also went pretty smoothly, with only one tiny hiccup. We were getting a little tired by this point as it was already dinnertime, and we had a long day. He hurt his hand when he was taking off the first sway bar. 😳😳🙄 I think he was trying to hurry the process along as we were getting hungry, and he took it off out of order. His hand got caught between the propane tank cover and the tool, and of course this is the one time he wasn’t wearing his gloves. I had to push the tank cover over to get it unstuck. This resulted in some fairly good scrapes on his hand and on the tank cover, but fortunately nothing is broken. There were a few tense moments that nearly cost us our religion. 😳🤪

We had spaghetti for dinner, which is when we discovered one of the propane tanks is empty. (The stove wouldn’t light.) Hopefully the other tank will last the whole week, but we may need to buy more. Also, I forgot to turn on the fridge before we left 🙄, so the cold food will need to stay in the cooler until morning.

We finished just in time to see the sunset and go for a walk around the park. Regardless of the troubles and trials we face, we are still very much in love and enjoy the time we have together. Thirty-seven years of marriage have taught us a thing or two about learning how to communicate, manage conflict, say “I’m sorry,” and forgive each other. This is the value of putting the Lord first in our marriage.

It’s a great day to be alive!

À la prochaine…hasta la próxima vez…until next time!

Helping Couples (Book Review)

I am not even close to reaching my goal of reading one book per month this year. Can you believe it’s already August? We have been a bit busy on other projects. However, I did just finish a book that I thought warranted a review. It’s called Helping Couples: Proven Strategies for Coaches, Counselors & Clergy, by Drs. Les & Leslie Parrott and Dr. David H. OIson (published in 2021 by Zondervan).

I had a hard time putting it down. I finished it in a few hours. I highly recommend it if you do any work or research with couples. Even if you don’t, if you are married or contemplating marriage, this book holds value for you and your mate.

These authors may sound familiar to you. They are all famous authors and researchers. They have appeared on The Today Show, Oprah, Good Morning America, and more venues. They have all developed reliable, validated assessments for premarital and marriage counseling.

While some may think of them as competitors in the marital assessment market, they worked together to provide us with a brief history of how marital and couple therapy research got started, as well as provided a plethora of information about working with couples from an evidence-based perspective. Their book is graced with humility, as they share the information they have learned through their collective years of research, yet I never got the impression they were “tooting their own horn,” so to speak.

Drs. Parrott and Olson are giants in the field of premarital and marriage counseling, and even bigger giants as it pertains to research. They started researching couple therapy in the 1960s and 1970s, and haven’t stopped since. They are what we call scholar-practitioners, meaning they built a solid practice based on years of research. Over half a million “marriage champions” (I like that term), and over five million couples have been studied over the years to contribute to the information found in this tiny, but mighty, little book.

Helping Couples is just six chapters long, in addition to an introduction and conclusion. It’s only 141 pages and an easy read. The actual text ends on page 113. That’s because there are so many studies referenced in the text, they needed twenty pages to include them all in their Notes. Twenty pages of references! Many of the studies they conducted with their own teams of colleagues, but they also reference other important researchers and practitioners that have contributed valuable information to our field. They claim they did not write a comprehensive book, and it wasn’t meant to be. But it seems to me their research is pretty exhaustive.

Here are some highlights you will find in the book Helping Couples, in random order.

  1. Lots of quotes by theologians, authors, counselors, philosophers, and more to supplement the text. One of my favorites was this quote by G. K. Chesterson: “Do not free a camel of the burden of his hump; you may be freeing him from being a camel,” (as it pertains to your relationship being unique.)
  2. Descriptions of various components of the SYMBIS (Parrots) and PREPARE/ENRICH (Olson) Programs. Both have value, depending on your particular style and interest. Also, both require training and certification to use with couples. Using the right assessment is critical in your work with couples. (I am a certified facilitator and trainer of facilitators for PREPARE/ENRICH, so it was helpful to learn more about SYMBIS.)
  3. Interesting stories from their early days of counseling. My favorite story was told in Chapter 6 by Dr. Olson. I literally gasped and then laughed out loud while I was reading in the café. He wrote about the first time he ever did couples therapy. No one had done it before, as person-centered and psychoanalysis with individuals were the therapeutic models. Yet, here they were working with a married couple in the same room at the same time. It’s not just the novelty of the first experience. He provided a little background on the couple, which is quite intriguing given their personal issues. I won’t spoil it for you, but it is worth the read.
  4. A good reminder of Gottman’s Four Horses of the Apocalypse. One of more of these “caution flags” inevitably precede a divorce. The presence or absence of these can predict marital success or failure at a 90% rate.
  5. A chapter on intimacy, which is the emotion in the marriage. The authors report that “intimacy is the number one predictor of happiness–or unhappiness–in a marriage.”
  6. Information on empathy. Couples need empathy for one another. When we move from “I” language to “we” language we begin to work together rather than against each other.
  7. The 31% factor. You can help a couple reduce their chances of divorce by 31%. It’s proven time and again in the research.
  8. A stage set for helping couples find lasting love, not just love.

I could go on, but I’ll stop there for now. I recommend this book to anyone who is in the helping business. Whether you are clergy, coaches, counselors, or marriage and family therapists, YOU are a marriage champion! Thank you for the work you do. Helping Couples is written for you.

Leave a comment below and let me know what you think. Be sure to tell me if you pick up the book, and what you think of it after you read it. You can purchase it on the Prepare/Enrich website for $9.00. Click this link to go to their store.


À la prochaine…hasta la próxima vez…until next time!

I’m a Guinea Pig!

I have been accepted to participate in a study at MD Anderson titled, “Optimizing Neurofeedback to Treat Chemotherapy Induced Peripheral Neuropathy.” That’s a mouthful! Basically, they are looking at neuropathy treatment options, and we will be making history. In case you don’t know what neuropathy is, you can read more here. My mom had diabetic neuropathy, and I never fully understood what she was experiencing. Now I do.

I don’t talk abut side effects of my treatment much, but when this study came up I thought it might help. My mother’s neuropathy was much worse, but I do have chemo-induced peripheral neuropathy in my feet, legs, and hands. My fingers tingle and itch at random times throughout the day. It makes playing the piano and typing on the keyboard a bit of a challenge. My legs feel like I have 20 pound weights tied to them, so I walk slower than my usual slowness. I sometimes have trouble with balance because my feet do not fully feel the ground beneath me. I have not fallen so it could be worse. And my feet feel like I am wearing socks with gravel inserted just south of my toes. Even when I am wearing sandals or walking around barefooted.

This study is looking at whether medication alone, neurofeedback alone, or the combination of the two has the best effect on peripheral neuropathy. At least that’s my understanding. We will be randomly assigned to the three groups listed above. Since everyone in the study gets some form of treatment for neuropathy, I agreed to try it out. It will last about a year and I will need to come downtown 2-3 times during that period. All the rest can be done from home. They hypothesize that since neuropathy is a neurological disorder, neurofeedback should help. They believe the treatment will retrain the brain to re-connect the nerves where they are intended to feel. Pretty cool when you think about it. Our brains are amazing creations.

I am here today to do the initial screening, and find out what group I’m in. Tim was kind enough to drive me downtown, and we actually got here early! My arm feels naked. This is the first time I’ve been to MD Anderson at any facility when they didn’t give me an armband with my MRN and DOB on it. No armband at all.

During today’s appointment they will be taking an EEG. It will be my first time doing that scan as well. This entails wearing a cap, which will contain a conductive gel on the inside. This gel will be coming in contact with my hair and scalp. They say the gel has no odor and comes out easily in the shower. I told Tim I might have a funny hairdo when I come out. They will be doing some brain mapping.

All expenses, including parking if I drive myself here, will be covered by the study. They will ship me the neurofeedback equipment (if I’m in one of those two groups). Unfortunately, it only works with Windows on a PC. If you know me at all, you know I’m definitely a Mac person so I will need to get a PC with Windows to participate in the study. It could be helpful to have an inexpensive computer for back-up and for guests to use. It’s either that, or I have to come downtown three times per week to do the treatment.

I’ll keep you posted on how the treatment goes, as well as the study if I am privy to the results.


À la prochaine…hasta la próxima vez…until next time!