Lake Michigan on Free

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A famous poet once said, “Thousands have lived without love, not one without water.” I am fortunate. I have found both.

Why does water have such an allure? We are all too familiar with it. Our bodies, as well as the earth, contain about 70% water. It should be mundane. We see it on a regular basis, in the rain and as we sweat. Yet, mere words cannot explain the beckon to which we respond. The moon seduces the tides of the sea, creating unique and inspiring experiences every second, minute and hour of the day. A tall glass of water nourishes the soul on a hot and thirsty day. Sailboats and mighty ships navigate the deep. Sandy beaches on the shore host thousands of romantic sun seekers.


Perhaps God created the earth as well as our bodies to remind us of the Living Water.

John 7:38

I love the beach, sounds of the crashing waves, seagulls and lighthouses. Lake Michigan has a magnetism different from the balmy ocean shore. A beach without salt, in cooler climates, and a natural wonder–it is the perfect combination to check off an item on our bucket list. However, several attempts by my hubby and me to ride there have been averted by weather or personal circumstances.

Until now.

When the HOG National Touring Rally announced they were going to circle Lake Michigan, my hubby and I were “all in!” #Ride365

The routes were planned and hotels were reserved. Rain or shine we were going, encouraging others to ride along. This would be the longest trip to date on Free (my Heritage), in a line-up of bikes with my hubby on his Road Glide. A few other friends decided to join us on this epic journey.


I ride because I can. I can because God is continuing to work miracles in my body. When the doctor said I had less than two years to live, God had other plans! (That was five years ago and my body is stable.) While I will always be considered “terminal,” “incurable,” and therefore “disabled” by legal standards, I believe God has something more to do in my life. I push myself to the limit, because my limit is not God’s limit. What I cannot do by my own strength, He provides.

I can do everything through Christ, who gives me strength.

Philippians 4:14 NLT

Our kick stands were up on August 26th, 2021, two days after our 36th anniversary. Twelve days later–Labor Day, September 6th–we would be back home, bikes safely nestled inside our garage. Just in time for several birthday celebrations. So, this was kind of an anniversary / birthday / “I can do all things through Christ” combination ride.

Facebook contains daily logs of our travels, with lots of pictures too. We also made a video (surprised? πŸ˜‚πŸ˜‚). Highlights included riding the Natchez Trace Parkway all the way from the southern to northern terminus, finding the “big egg” in Mentone Indiana, the HOG Touring Rally events, riding through the “Tunnel of Trees,” Legs Inn Historic Landmark, Lighthouses, crossing the Mackinac Bridge (it’s a suspension bridge, and we had to ride on the grates 😳😳), riding by Lake Superior, Door County Loop and Al’s Swedish Restaurant (best known as “the restaurant with goats on the roof”), the Harley-Davidson Museum and Hometown Rally, scenic byways with Amish in carriages led by horses, watching a horse slip on wet pavement and fall to the ground right in front of us (😳), early morning fog, and of course the camaraderie of all our riding buddies.

All around the Lake we had the most beautiful weather. Blue skies and cool riding temperatures. We only had a few patches of rain on the way up and back, but otherwise it was picture perfect.

Here’s a link to the video recap, which barely scratches the surface. Be sure to turn on the sound to hear Flat Cowboy’s 🀠 reflections on the trip. πŸ˜‚πŸ˜‚πŸ€ͺπŸ€ͺ He’s our Chapter Mascot. You’ll also hear from our Shooters, the leaders of the Rally, and an extra rider we picked up in Mentone Indiana at the big Egg πŸ˜‚. The guys from the Woodlands Chapter turned down an interview, but we enjoyed having them on the ride as well!


In addition to the video and pictures I took on my iPhone in the previous movie, I also shot some footage on my GoPro, which was attached to my mustache bar. Unfortunately, most of the time I couldn’t reach the record button from the saddle. (I did try a couple of times on a straight and traffic-free road 😜😜.) The video below includes a conglomeration of shots from that angle as well, which is totally new footage not previously seen. I think it’s pretty cool.

A little disclaimer here. I’m still learning how to record the bluetooth intercom system with my Hero 3+, but it was fun to try. When making movies it is important yet very challenging to anticipate scenes in advance. For example, when to turn on the video to get that “perfect shot,” how long the battery will last, and how much footage that little disk can hold. It’s especially hard when riding in a group, setting up the camera while trying not to hold everyone up. I don’t have a production crew. Motorcycling requires one to practice minimalism. It’s just me and my iPhone, or my GoPro camera. I shoot, and I edit. (I use iMovie because it’s free and easy to use.) I’m just thankful to have the equipment to do something I love. And I am especially grateful when people do silly antics or say amazing things to make it more enjoyable.

That’s probably way more technical stuff than you care to know πŸ˜‚πŸ€ͺ😎. So, now you can just sit back, relax, and enjoy the ride!


I really wanted to record the entire Bridge crossing, but I was SO scared just hanging on for dear life. I didn’t know for sure if it was recording. Seems the battery died half-way across the bridge, sadly πŸ˜ͺ, just before we had to ride on the grated lane 😳😳. But, I was pleased to see some footage of the bridge and tunnel of trees on the download, which I thought I had missed completely.

Since Big Mac is the only way across to the Upper Peninsula, that’s proof enough. Did it. Checked the box. Probably won’t do it again πŸ˜‚. Well, I could be swayed.

From that point on, the GoPro stayed in my bag. I couldn’t be bothered.

There’s a lot to remember when gearing up for a ride, including putting everything away and locking down all the saddlebags; pre-checking the bike with T-CLOCS (does anyone do that?πŸ€ͺπŸ€ͺ); gearing up with sunscreen, lip balm, headband, bandana, turtle neck, jacket, chaps, gloves, goggles, helmet, headphones, intercom, phone, GoPro; and entering the address into my GPS. I take my time so as not to forget anything, but it’s never foolproof. Just ask some unknown rider who lost their gloves and hat a short ride from one of our hotels. No, we didn’t stop and pick them up, although we probably would have found their owner at the next Rally meet-up point.


“Can you hear me?” Silence. Tim’s Sena battery had a propensity to run out ahead of mine. On those occasions, I took the lead since I had the address plugged into my phone. We discovered my riding style changes when I’m in the lead. Generally, I take off faster, ride down the road at higher speeds, and don’t hesitate as much since I don’t have to figure out what the bike in front of me is doing. At least, that’s what I’m told. If you ride in front of me (or behind me for that matter), be prepared to wait. πŸ€ͺ😜πŸ€ͺ

Tim’s reassuring voice was in my ear as I rode 3,936 miles on my bike (my biggest ride yet), and an additional 209 with him on the Road Glide, for a grand total of 4,145 miles. Quite a trip! If you haven’t gone there, go! Memories that will last a lifetime.


Γ€ la prochaine…Until Next Time!


To Treat or Not to Treat?

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You may recall my treatment was canceled in February because they could not get the preauthorization from insurance in time. (They eventually did get it a few days later; I was told by Cigna it’s good for a year.)

So, today is six weeks since my last treatment. This requires a reload, meaning double the dose and a lengthier infusion. Plus I’m getting Zometa today for the bones, so an even lengthier day in the chemo room.

That’s all well and good. Yay, I’m getting treatment…or not??

BUT THEN… I get a call this morning from Dr. K’s nurse and she said I need to have an echocardiogram before I can get treatment, “I’ve scheduled one for you today, downtown at 11:00.” What?? I can’t just drop everything and go downtown. (Have I told you how much I detest going downtown? 😀😀) I have to work up to that trip. In addition, we have meetings this morning and I couldn’t get there in time anyway, as well as get back in time for chemo.

Besides, I already have an echocardiogram scheduled for March 30th. My cardiologist said I’ve “graduated,” and he gave me six months before I needed another one. The last one was in September.

“Yes, but it was September 4th. It’s been more than six months.”

Wow…they are really pedantic about six months. To. The. DAY.

So this started a series of “what if” questions, a flurry of phone calls, self-talk, and stress over whether I would be able to get treatment today. This may not seem like a big deal. At least to me it didn’t. Just go ahead and treat! But apparently it is a big deal.

Then my oncologist (Dr. K) gets on the phone. “What if you just come in tomorrow?” he presses.

Does that really do anything for us? What if I don’t get the echo in time? What if my cardiologist doesn’t clear me for treatment? Why did they wait until the day of treatment to tell me this? Why didn’t they have the preauthorization last time, until after treatment?

Don’t mess with our HOG Trips!!

If I don’t get it today, this disrupts our entire year of planning. We have identified the days I will have chemo, when we can travel, and when we will be at home. It’s not like I’m dying for crying out loud (or am I? πŸ™„).

I asked, “If I can’t get it today, can’t I just keep my echo appointment on March 30th and keep the chemo scheduled on April 6th?”

“Absolutely not. We don’t want to do that. We can’t wait that long.” There was an urgency in his voice. He continued with a discussion of the importance of this treatment, and how we should be careful not set any of our plans in stone. Always be prepared for something to come up, and be flexible with those treatment dates.

Try telling my hubby that πŸ˜”πŸ˜”.

Dr. K. said he would try to get in touch with my cardiologist (Dr. I.) to see if it’s okay to go ahead with treatment today. He is concerned about my safety, and he wouldn’t want to jeopardize my heart. I was praying he could get in touch with him, because when I called my cardiologist they said he was not in today–probably doing some type of procedure.

Happily, Dr. K has Dr. I’s cell phone. Within an hour he was able to get a positive response. As long as I’m asymptomatic, continue to take my heart pills every day, and no swelling, Dr. I doesn’t see any reason I can’t get treatment today.

Whew! Crisis averted.

All kidding aside, I do appreciate my doctor’s diligence to keep me safe, as well as treat me for this awful disease. This did serve as a reminder that I’m not merely taking an aspirin each day. These are very heavy doses of immunotherapy (#chemonotchemo) that can be hard on the heart. So far I have been tolerating it well, but you never know what could happen in the long run. They have to be cautious. It’s also a reality check that without it, the cancer could rear its ugly head. We certainly don’t want that. 😳

At least I get a chemo room with a view. 😊

I’ve also come to the realization that I need to be my own case manager. When it’s almost time for a preauthorization, it will be in my calendar so I don’t miss another treatment. When it’s time for an echo, I’ll make sure my appointment is at least 6 months minus a couple of weeks, so we don’t echo this problem again. (See what I did there?)


Γ€ la prochaine…until next time!

Canceled

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No, I’m not talking about the current cancel culture, although that would be a lively blog I’m sure. I’m writing about my infusion, which was supposed to take place today.

We had some wicked snow storms in Texas last week. It is the worse I’ve ever seen it. We got several inches and built a snowman! The snow stayed on the ground all week. MD Anderson was closed the entire week.

I can only assume they have been a bit behind on paperwork. I was caught in the cracks as my yearly pre-authorization was up and needed to be renewed. They tried to get the pre-authorization from my insurance company, but could not get it in time for treatment. We are leaving on a trip, so we won’t be able to get it until March. Then we have to reload…

It is what it is. It will be six weeks between treatments, but I feel fine. So I am not worried.

Γ€ la prochaine … until next time.

A New Adventure!

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We did it! We purchased a new recreational vehicle/RV. It’s a 2021 Airstream International 30RB-Twin to be exact. We are moving toward a new ministry adventure and it will be exactly that. I can’t wait to share the details of the ministry in a later blog, but for now I’ll share some details of the Airstream. Isn’t she a beaut?!

We pulled it home from DFW Airstream in Ft. Worth today, after signing the papers and doing the walk through. It’s intense folks! Lots of learning to do. A diesel would have pulled a bit smoother, but our RAM 1500 did just fine.

We were full-timers in a fifth wheel with our daughter and little dog back in 2012, just before I was diagnosed with breast cancer the first time (that’s the reason we came off the road). We have a working knowledge of the RV set-up, but it’s amazing how much you forget after eight years. Plus the Airstream has just a few differences compared to what we had before.

We knew we didn’t want another fifth wheel, so we were debating between a diesel pusher and a travel trailer. Lots and lots of reasons why we decided to go with an Airstream related to health, overall value, and what is available in the market right now. The RV industry is craaazzzzyyy! We had a hard time finding a rig, and when we did it was sold before we could get to Dallas. They had another one en route and since we had seen the inside of the other one we snatched it up. If we hadn’t, it would have been February before we could get one.

It’s hard to get Tim to do a video, but we made this brief video of us taking it home. Tensions were high as we had just pulled away from the dealership and it was a challenge getting out of there!

And here’s a silly video of the inside tour. I’m so glad we are going to be able to take trips together and do ministry together. More on that to come!


Á la prochaine…until next time!

New Truck!

You may chuckle if you’ve heard this one before. About two years ago we bought a dually one-ton truck with full intentions to pull a fifth wheel, then something happened that changed our minds. I think the brain mets might have scared us at the time, or for other reasons the fifth wheel ended up not being the right choice. Timing wasn’t right and we traded the truck for a VW Atlas SUV. Who does that? πŸ˜‚

That was then. This is now. We are no longer afraid of my diagnosis, nor our future. We are living life to the fullest. We are living life in the present, fully engaged in ministry together. We are no longer worried about my cancer coming back because, guess what, it already did! My body is stable, and there are lots of treatment options if anything recurs. Worrying and fretting does not alter reality.


“Don’t live in the past or future…make history.”

~Wally Byam

Like the RV industry, trucks are hard to find! It’s nearly impossible to find a good used one, and the choice on new ones is slim due to decreased production in the pandemic. We settled on a 2020 Dodge Ram 1500, equipped with the tow package. The color is Patriot Blue with a black interior. It has new technology so we can charge our devices on the road. After multiple trips back and forth, they gave us a better deal than the Ford dealership could offer us. It has a little ding on the passenger door, so they also threw in service for two years because they didn’t want to fix it. (This was part of the reason for the back and forth, as we were looking for one without the obvious flaw.) Once the papers were signed we ended up in a better position than our VW Atlas. My husband is a negotiating savant. Amazing.

They gave us a “We Owe” to add the trailer break control. This is a requirement or the Airstream dealer will not let us drive off their lot. After we signed all the paperwork we went to parts department who said these were on back order until December!! Whaaaat?? Yet another result of the pandemic and decrease in production. We were about to tear up the contract, but they managed to do some computer voodoo and find us the part. Whew! We will have that installed on Monday. Wow! What a drama…

We got it home and it barely fits in the garage…barely! But it does fit with a few inches to spare. They were true on their word. I may need to lose a few pounds to squeeze over to my side. πŸ˜‚

If you read my last blog you will recall that we are fully intending to keep this one. I made Tim promise we would not buy a truck until we had bought an RV. πŸ˜‚ We put down a deposit on an Airstream and we are not going back on this deal! We will reveal more about our new ministry in time, but this is the first step of faith toward following God’s leading.


“Taking a leap of faith is better than taking a leap of doubt.”

~unknown

Á la prochaine…until next time.

Another New Adventure

Today was #chemoday. Truthfully I am on biotherapy, but most people don’t understand what that means. So, we call it chemo. It’s maintenance drips of Herceptin and Perjeta, which I get infused in the chemo room at MD Anderson, given by the chemo nurses every three weeks. No major side effects to date, and I’ve had more than 50 of these.

They got me in for treatment and even finished early, so we jumped in the car and took a drive to Dallas to look at an RV — a 2021 Airstream International 30RB Twin to be exact. If you haven’t been following the RV industry lately, it is hopping! It’s nearly impossible to find anything locally, or anywhere for that matter, as people are working from home and staying in the USA due to COVID, meaning they are buying up recreational vehicles.

We are in the process of launching a new ministry, where both of our skill sets will be vital to its success. We love doing ministry together, and we love challenging people to a spirit of adventure. We will be sharing more about this ministry as it unfolds, but the ride up and back included dreaming and planning how an Airstream can help fulfill our ministry goals.

We were “full-timers” about 8 years ago, in the latter half of 2012. We lived in a fifth-wheel with our then 9th grade daughter and our little dog Midge, traveling from location to location where we served the churches in Texas. We learned a lot about the RV lifestyle. This was brought to a screeching halt when I was diagnosed with breast cancer the first time. We sold the fifth wheel in exchange for chemo, surgery, radiation, and more treatment.

We have always dreamed of going back on the road, and God seems to be saying “now.”

No, we aren’t selling our house. No, we aren’t going full-time on the road. But, yes, we will be doing life and ministry together and it has the potential to happen in a silver RV.


A fifth wheel requires a lot more set-up than a travel trailer, is heavier to pull, and in general has more potential for things to go wrong with it. We crossed fifth wheel off the options. Our final debate was between a Class A motorhome or bumper pull. We really wanted the motor coach, but could not justify spending the money. We looked at cheaper travel trailers, but most bumper pulls as well as fifth wheels are made with formaldehyde (we can smell it and it burns my sensitive eyes!).

In the past two years we have done a LOT of research, and the Airstream checks the most boxes in our “must have” list. It has quality parts as well as an iconic history. Without the challenge of navigating slides, we feel this will give us the most flexibility as well as comfort on those longer road trips. Our research shows it has the highest resale of all products on the market as well.

This is definitely a leap of faith, and we are looking forward to seeing what God has in store!


“And without faith it is impossible to please him, for whoever would draw near to GodΒ must believe that he exists andΒ that he rewards those who seek him.”

Hebrews 11:6 (ESV)

Á la prochaine…until next time!

Day 11 (and final day) of our 35th Anniversary Ride


208.8 miles today…. in the rain. 🌧 Cleburne, TX to HOME (Conroe, TX)!!


Today was our last day. Sad the trip is over but we are so glad to be home. We purposefully rode further yesterday to make today a shorter day. We kept watching the weather and there were thunderstorms all around us. But we decided to press on and prayed the whole way. It rained, but the visibility and temperature were manageable.

It rained for the first two hoursβ€”we were soaked to the boneβ€”so we stopped in the new Sonic in Hubbard for a reprieve. It’s an indoor Sonic, not a drive-in like you typically see. I did not want to get back on the bike, but the show must go on!

After that we debated our route and decided to get home the fastest way possible. On to the interstate! From Buffalo the ride home was rain-free!

Total trip miles…3,008.8 (some 2-up, and some on two bikes). On my bike I rode 2759.9 miles!

Time for the 10,000 mile service!

As I reflect on this trip, I am grateful to the Lord for so many things. We made it, and we made it safely. (I did lay the bike down once, but that’s par for me.) I am thankful for a husband who supports me in my cancer journey, and even helps me get the bike into a good position for pulling out of parking spots. I am so blessed to have a stable body, with the ability to ride my own ride and go the distance. While I may get tired a little easier, I still have the ability to ride. We may sell my bike at some point and go back to riding 2-up on all the trips, but at least I can ride! God has blessed me with so many things. I can’t complain.

Thankful for a safe ride, for all the wonderful sites we saw, and for the joy of being together to celebrate our 35 years of marriage. Like I told Tim, this trip mirrored our life in many ways. Ups and downs, rain and sunshine, beautiful sites and some boring as well, life on the wild side, frustrations and love, laughter and tears, education and recreation, yummy foods and boring breakfast bags, exhausting but exhilarating, and so much more. We hope there are at least 35 more!


Á la prochaine…until next time!

Day 10 of our 35th Anniversary Ride

370.5 miles today. Zig Zag route from Woodward, Oklahoma to Cleburne, Texas.


KSU 6:30 AM. We were trying to get ahead of the storm. It was still dark when we left. Unfortunately we never saw the sunrise because it was sooo cloudy all day. πŸ˜ͺ Very few patches of blue sky. I wore my clear goggles all but the last thirty minutes of the day.

It’s always an adventure!

We had planned on going one route, through Elk City, but my GPS had other plans πŸ˜‚. At one point we were zig zagging through the countryside on Oklahoma county roads that didn’t even show up on Tim’s nav. Similar to when we rode through Kansas, these roads turned into dirt roads right after we turned off, so we were sweating bullets at times! It may have been an angel πŸ‘Ό preventing us from the big storms which we could always see in front or beside us, but we did not ride under.

We ate breakfast at Love’s because we are so tired of the COVID- bag breakfast in the hotels which only offer a muffin at best. The Love’s cashier was an interesting lady. She rides this trike to work every day. She converted it to power with a 1-gallon gas tank all by herself. I love meeting people on our trips as they lead such fascinating lives!

We finally saw the sun! Somehow we managed to ride between the storm clouds for most of the day.

We did get rained on, only briefly, but we managed to avoid riding through the bad thunderstorms. We pulled into a roadside (covered) picnic area for a snack in Olney, Texas off 281 and the rain stopped. This is a new road for us but we have noticed Texas has lovely picnic stops. Incidentally a Sheriff pulled in the spot next to us, eating his BBQ lunch. We made sure to STOP as we were leavingΒ πŸ˜‚ (our last trip we both got a ticket for not stopping completely at a stop sign).

When coming through Wichita Falls, the temperature changed from a very cool 78 to a hot 90 in about one minute or less. Sudden changes like that are not usually a good weather sign 😳. A supercell formed to the east of us bringing heavy winds… so we kept plodding along.

We arrived at our hotel in Cleburne Texas just before the sky opened up. It did finally catch up to us after we checked into the hotel, so we ordered food from DoorDash. Wicked storm for sure!! We scored with an upgraded room and upgraded snacks. πŸ˜ƒ They talked us into trying the local root beer, and it was delicious! I would definitely have it again.

Flash Flood warnings – we are so glad to be inside! This storm looks like it will be hanging around a while. We have a short ride home tomorrow. About four hours. They are expecting more thunderstorms all day 😒😒. Praying the weather changes or we may have to hang out here in Cleburne until it passes. We are debating whether to just leave my bike here or grin and bear it. I admit I am a little scared! 😱😱


Á la prochaine…until next time!

Day 9 of our 35th Anniversary Ride

 (Life 360 App)

391 miles today. North Platte, Nebraska to Woodward, Oklahoma.


KSU was 8:00 AM, a little later than normal since it was 54 degrees. Brrr! Bundled up, layered up, buckled up and… eventually it warmed up to around 80 and the layers came off. With the exception of those two massive construction delays 😀, it was, as many folks along the way commented, β€œa beautiful day for a ride!”

This flagger was quite chatty. But she would not let us put our kickstands down for our FIFTEEN MINUTE delay. She said the blacktop was too soft, so we had to hold the bikes up in the wind. The trucker behind us got out to ask how long, and then made a snide remark about being a female on a construction crew.Β πŸ™„ She ended up switching to our pilot car driver after the wait, of which we were thankful because the other driver was really slow.

It was a super duper wicked windy day…and has been for the past several days.Β πŸ’¨

Tomorrow does not look as promising. For the first time in ten days, it looks like we are heading into a storm. Yikes!


Á la prochaine…until next time.

Day 8 of our 35th Anniversary Trip

Rapid City, SD to North Platte, Nebraska. On our way home!


We rode on the Gold Rush and Western Trails Scenic Byways and stopped for a brief, cool-off, museum visit in Bayard Nebraska to see the Chimney Rock National Historic Site. The pioneer emigrants used this landmark to navigate the trails. More emigrants wrote about Chimney Rock in their diaries than any other trail landmark. The museum is interactive and pretty cool for being in the middle of nowhere Nebraska. We agreed the entrance fee was our contribution to education. We didn’t walk all the way out to the Rock, as it was very hot and we had on our riding gear, but maybe when we were in our twenties we would have enjoyed the climb!

Me and my riding buddy at Chimney Rock Historical Site
Chimney Rock

After the museum, we rode through some horrible wind. Actually, we rode through strong winds all day. The byways are spattered with idyllic views. In the distance we saw Courthouse Rock (where we are told they used to put criminals on trial) and Jailhouse Rock (where they would hang them). We were on the bikes so I didn’t get a picture of those, but it entertained us nonetheless. I would like to visit them up close, as well as the remains of the pony express and other sites on the byways. This trip is the first we have spent riding through Nebraska and we left much for future trips. It’s a beautiful and historic state!

The bikes got thirsty so we stopped at Sinclair to fill up. It’s a popular gas station in this area, famous for their dinosaur icon. Even the DINO (Apatosaurus or Brontosaurus?) has a unique history. It was fun to see how each Sinclair presents the DINO. We like this local chain as it is clean and all, but they don’t usually have premium gasoline as it is harder to get. We settled for unleaded without ethanol. πŸ™„

I got 53 mpg on that last tank!


Á la prochaine…until next time.