After chemo we hooked up the Airstream and headed north to Lake Tawakoni (Tah-WAH-kuh-nee). It’s near Point Texas, east of Dallas, about 3.5 hours from our house. Looks like a nice, quiet place to sit for a week. Tim will be working from the trailer, or the nearest Panera Bread, and I will be sipping tea while doing whatever it is that I do. 🤪🤪
The hook-up went much smoother than we expected. We timed it, and from start to finish we were ready to leave the storage unit in less than 45 minutes. That included hosing down the rig and putting air in the tires, which we don’t always do. This storage facility has everything from a dump station to air and water.
One tank of gas made it all the way up, but we didn’t get as good of gas mileage as we had hoped. This truck does tow better than the Ram, though, which is why we traded in the first place.
Luckily, a spot was open right on the lake. It’s idyllic. Big trees will block the heat and separate us from other guests. We have a great view of the sunset. Tim backed into the camping spot like a pro. 🤩🤩 We had to use our levelers for the first time in a while.
Just after sunset.
Unhitching the trailer and setting up camp also went pretty smoothly, with only one tiny hiccup. We were getting a little tired by this point as it was already dinnertime, and we had a long day. He hurt his hand when he was taking off the first sway bar. 😳😳🙄 I think he was trying to hurry the process along as we were getting hungry, and he took it off out of order. His hand got caught between the propane tank cover and the tool, and of course this is the one time he wasn’t wearing his gloves. I had to push the tank cover over to get it unstuck. This resulted in some fairly good scrapes on his hand and on the tank cover, but fortunately nothing is broken. There were a few tense moments that nearly cost us our religion. 😳🤪
We had spaghetti for dinner, which is when we discovered one of the propane tanks is empty. (The stove wouldn’t light.) Hopefully the other tank will last the whole week, but we may need to buy more. Also, I forgot to turn on the fridge before we left 🙄, so the cold food will need to stay in the cooler until morning.
We finished just in time to see the sunset and go for a walk around the park. Regardless of the troubles and trials we face, we are still very much in love and enjoy the time we have together. Thirty-seven years of marriage have taught us a thing or two about learning how to communicate, manage conflict, say “I’m sorry,” and forgive each other. This is the value of putting the Lord first in our marriage.
It’s a great day to be alive!
À la prochaine…hasta la próxima vez…until next time!
I am not even close to reaching my goal of reading one book per month this year. Can you believe it’s already August? We have been a bit busy on other projects. However, I did just finish a book that I thought warranted a review. It’s called Helping Couples: Proven Strategies for Coaches, Counselors & Clergy, by Drs. Les & Leslie Parrott and Dr. David H. OIson (published in 2021 by Zondervan).
I had a hard time putting it down. I finished it in a few hours. I highly recommend it if you do any work or research with couples. Even if you don’t, if you are married or contemplating marriage, this book holds value for you and your mate.
These authors may sound familiar to you. They are all famous authors and researchers. They have appeared on The Today Show, Oprah, Good Morning America, and more venues. They have all developed reliable, validated assessments for premarital and marriage counseling.
While some may think of them as competitors in the marital assessment market, they worked together to provide us with a brief history of how marital and couple therapy research got started, as well as provided a plethora of information about working with couples from an evidence-based perspective. Their book is graced with humility, as they share the information they have learned through their collective years of research, yet I never got the impression they were “tooting their own horn,” so to speak.
Drs. Parrott and Olson are giants in the field of premarital and marriage counseling, and even bigger giants as it pertains to research. They started researching couple therapy in the 1960s and 1970s, and haven’t stopped since. They are what we call scholar-practitioners, meaning they built a solid practice based on years of research. Over half a million “marriage champions” (I like that term), and over five million couples have been studied over the years to contribute to the information found in this tiny, but mighty, little book.
Helping Couples is just six chapters long, in addition to an introduction and conclusion. It’s only 141 pages and an easy read. The actual text ends on page 113. That’s because there are so many studies referenced in the text, they needed twenty pages to include them all in their Notes. Twenty pages of references! Many of the studies they conducted with their own teams of colleagues, but they also reference other important researchers and practitioners that have contributed valuable information to our field. They claim they did not write a comprehensive book, and it wasn’t meant to be. But it seems to me their research is pretty exhaustive.
Here are some highlights you will find in the book Helping Couples, in random order.
Lots of quotes by theologians, authors, counselors, philosophers, and more to supplement the text. One of my favorites was this quote by G. K. Chesterson: “Do not free a camel of the burden of his hump; you may be freeing him from being a camel,” (as it pertains to your relationship being unique.)
Descriptions of various components of the SYMBIS (Parrots) and PREPARE/ENRICH (Olson) Programs. Both have value, depending on your particular style and interest. Also, both require training and certification to use with couples. Using the right assessment is critical in your work with couples. (I am a certified facilitator and trainer of facilitators for PREPARE/ENRICH, so it was helpful to learn more about SYMBIS.)
Interesting stories from their early days of counseling. My favorite story was told in Chapter 6 by Dr. Olson. I literally gasped and then laughed out loud while I was reading in the café. He wrote about the first time he ever did couples therapy. No one had done it before, as person-centered and psychoanalysis with individuals were the therapeutic models. Yet, here they were working with a married couple in the same room at the same time. It’s not just the novelty of the first experience. He provided a little background on the couple, which is quite intriguing given their personal issues. I won’t spoil it for you, but it is worth the read.
A good reminder of Gottman’s Four Horses of the Apocalypse. One of more of these “caution flags” inevitably precede a divorce. The presence or absence of these can predict marital success or failure at a 90% rate.
A chapter on intimacy, which is the emotion in the marriage. The authors report that “intimacy is the number one predictor of happiness–or unhappiness–in a marriage.”
Information on empathy. Couples need empathy for one another. When we move from “I” language to “we” language we begin to work together rather than against each other.
The 31% factor. You can help a couple reduce their chances of divorce by 31%. It’s proven time and again in the research.
A stage set for helping couples find lasting love, not just love.
I could go on, but I’ll stop there for now. I recommend this book to anyone who is in the helping business. Whether you are clergy, coaches, counselors, or marriage and family therapists, YOU are a marriage champion! Thank you for the work you do. Helping Couples is written for you.
Leave a comment below and let me know what you think. Be sure to tell me if you pick up the book, and what you think of it after you read it. You can purchase it on the Prepare/Enrich website for $9.00. Click this link to go to their store.
À la prochaine…hasta la próxima vez…until next time!
I’ve never seen a bear climb a pole before. Have you? Before you get worried that we were in danger, we were watching this unfold from the viewing deck at the North American Bear Center in Ely Minnesota, one of the intentional stops we made along our motorcycle path. Somewhere in the middle of Superior National Forest is a home to some rescued black bears, and some wild ones as well. We saw a squirrel do this just a few minutes earlier, but much faster 😂😂. It’s worth the 23 seconds to watch…
I learned a lot about black bears. For example, they don’t attack humans. They might chuff and stomp and throatily moan, but they do not growl (wolf sound effects are dubbed in for the movies). And they even have a white coat in some parts, unrelated to the polar bear and, no, they are not albinos. Lots of things to read in this place. The bear in the video is Holly. She is the matriarch of the bears at the Center.
Riding to the HOG rally, Duluth MI, our last day.
For the past decade we have looked forward to a big ride every summer. Some years we have gone on more than one trip. At the end of the ride we immediately began planning our next one. Last year we rode two bikes to Colorado, Lake Michigan, and Tennessee on three separate trips.
In December we sold the bikes.
We didn’t experience any remorse when we sold the bikes. We had ridden in all 48 states on two wheels. We’ve experienced rain, heat, hail, perfect days and not-so-perfect days, break-downs and bumps in the road that nearly fling you off your seat. We’ve seen a lot of sites. After our Tennessee trip, we didn’t immediately start planning another trip like we had in the past. 🤷♀️🤷♀️
After two days of riding home in the cold rain (insert claps of thunder sounds), perhaps we were burned out. Or maybe we just felt like we had accomplished our goal. Our bucket list was complete. In all reality, we aren’t really sure why, but we decided to do something different.
We plan to travel more using our Airstream. And, we will rent a Harley in far away places, where we can’t ride to (or don’t want to take the extra days to ride to). We will likely buy one someday in the near future.
Some people might wonder what this has to do with metastatic breast cancer. After all, that’s the purpose of my blog. It’s about livingwith metastatic breast cancer. We decided a long time ago we would not let life pass us by. We will continue to live life to the fullest as long as I have breath and energy to do so. We are taking John 10:10 literally, embracing the abundant life Jesus has given us.
The Ride. When they announced the national HOG touring rally was going around Lake Superior, we signed up as soon as registration opened. It’s a follow-up to the Lake Michigan tour we went on last year. It’s fun meeting up with other HOG enthusiasts as well as some executives who keep Harley-Davidson in check. We mapped out our route, and found the nearest dealership to rent a bike. We joined Eagle Rider to save on the rental cost.
Coop, meet our ride for the week! I promise she isn’t snubbing you, she’s just sad she can’t go along for the ride. 🤪😂
We rented the gunmetal gray Road Glide Limited pictured above from Harley-Davidson of Madison (Wisconsin). That’s a wonderful dealership. They stored our car for us as well. They are super nice and helpful people there. Alissa helped us with the rental, and another worker also helped connect Tim’s phone to bluetooth.
A sales guy tried real hard to sell Tim the CVO when we came back through. Tempting!! 😁
Because we were renting, we could not take the bike into Canada. That was a bummer, as it was part of the reason we chose this rally. I suppose we could have just tried it, but Eagle Rider wouldn’t cover any costs if there was an accident. Better not to risk it. We met the rally in Marquette Michigan, then went on an adventure of our own. They headed east to circle the lake counter-clockwise. We headed west and planned to meet them in Duluth.
The weather was beautiful from Madison to Marquette. The next day we rode west. Saw another Wisconsin sign, through Duluth, and on to International Falls through the national forest. Got rained on that day, but we did make it all the way to Duluth without getting wet.
Sad News. On the way to International Falls we got a call from Tim’s brother and sister. We were on a back road and had to find a place to pull over. His mom fell asleep with a cigarette in her mouth, while hooked up to her oxygen. She burned her face and tongue pretty badly. We stayed on course as they said Hospice was taking care of her. (She was already on home Hospice and was not given long to live.) We had planned to stop by on the way back through, and they thought she would be okay in a few days.
The next day we were on our way to Grand Portage Minnesota (by the Canadian border) when we got the call that his mom had passed away. I think this was just about the time we stopped at the Bear Center. Apparently, Hospice transported her to a Hospice House where they planned to care for her a few days. They gave her some morphine, and less than an hour later she was gone. It was July 27, 2022. She was 77 years old.
We have since learned the smoke inhalation (combined with her COPD and heart problems) lead to her death. They ruled it an accident. It’s a sad and traumatic way to die. She may have lived a few weeks longer had she not had the accident, but we are comforted by the fact that she was ready to go. She has been ready for a while now.
We were also happy we got to see her and spend some time with her on the way up. We played Yahtzee, had lunch together (she ate a whole meal with dessert), and chatted on the front porch. She talked about meeting Bill in heaven soon. Our last memories of her were positive, and we felt encouraged. She was a wonderful mother-in-law, and I will miss her.
Of course, this news put a bit of a damper on our motorcycle trip. We decided to cancel the last leg and head to his mom’s house from Duluth so Tim could meet with the family regarding arrangements. Canada is a long way up there! We had to return the motorcycle, so it wasn’t exactly a straight path. It would take us three days from the time we left Grand Portage.
We met with his siblings on Ruth Ann’s porch Sunday afternoon (yesterday), and went over the memorial and burial arrangements. It’s always interesting when family gets together 🙄.
Left to Right: Rick, Deidre, Deborah, Tim
Ruth Ann wanted to be cremated, which is probably a good thing given her condition at death. The coroner held her body to do their investigation, and finally released the death certificate this morning. On our way out of town, we met with the probate office, the funeral home, went by the cemetery, and stopped by the house to pick up some paperwork. We said our final good-byes (see you in a couple of weeks) to his siblings, then we headed home. We drove straight through.
Her memorial (celebration of life) will be in two weeks. Peachtree Village in Farmington Arkansas has graciously offered their facility, and they will provide food as well. Ruth Ann worked there for a while, and they loved her. Everyone did! Her memorial will be held on Sunday, August 14 2022 at 2:00 PM. After that we will move to Lincoln Cemetery for the internment of her ashes.
You never know how someone is going to die. I was told 6-9 months when I was diagnosed with metastatic breast cancer in 2016, and I’m still here. One of my breast friends was deemed cancer free and she died in an accident. Tim’s mom was told 6 months, then she died from an accident. Tim’s dad also died from unexpected, strange circumstances back in 2003. You never know. We just live this little mist called life to the fullest every day, trusting God for the outcome–whatever that may be.
What do you know about tomorrow? How can you be so sure about your life? It is nothing more than mist that appears for only a little while before it disappears.
James 4:14 (CEV)
Memories. It seems a bit odd to be posting a blog about fun and sadness all at the same time. But that’s the way life is sometimes. It’s filled with ups and downs. The line from Forrest Gump is so true…Life is like a box of chocolates. You never know what you’re going to get.
If you’re my FaceBook friend, you can see a bunch of photos from our motorcycle ride. It’s hard to pick just a few, as there are so many photos and videos to choose from. Here are some of my favorite moments from our trip.
Paris…Texas that is!
We’ve decided to start visiting all the Airstream Dealers. Most of them have no inventory right now.Finally got to go there. See Tim disappearing into the cornfields?!Loved laying on the soft, northern grass beneath the large shade trees.That was a beautiful day for a ride! Welcome to the Rally. Here’s your swag.No rain to Duluth, then it hit! 😫😭 We stayed in Ranier, which is a quaint port town with an award-winning hotel just outside of International Falls. Another beautiful day for a ride! We did get spit on a few times, but missed the deluge.Six miles from Canada! We took a walk and it was much longer than we anticipated!Windy! See the flags? Enjoy the ride!!We could have gotten a challenge coin here! Totally missed it. 😫This was a beautiful stop. Two lighthouses at one location!
À la prochaine…hasta la próxima vez…until next time!
This time it was Tim. He was away from me for several days, so we don’t think he caught it from me. I was no longer having symptoms.
We had our last day of worship at Parkgate Community Church on July 10th, and they gave us a nice reception to say thanks for the work we’ve done over the past nine and a half months. Tim was their Interim Pastor; I helped with worship and kiddos, as well as revising the bylaws. Their new pastor starts next week.
We packed up our Airstream on Monday July 11th and put her in storage. We’ve been living there half-weeks while Tim was Interim pastoring in Pasadena. Everything seemed to be going well until Tim started feeling a little under the weather later that night. He tested positive for Covid the following day. I tested negative.
No RV to quarantine to this time and I really didn’t want to go to a hotel. So we set up a barrier between us and steered clear of each other until he got better. He had congestion, cough, and fatigue for about a week. Then he had fever blisters that lasted another week. No kissing! 🤪😳😂😭
We were supposed to leave on our big trip Wednesday, so we had to make some last minute cancellations. Our original plan was to stop over and see his mom in Arkansas, then drive northeast to Villanova for our research residency, head west to Wisconsin and ride a rental bike in the Lake Superior Touring Rally, then head home. That all changed.
We postponed the visit with his mom and ended up doing our residency by Zoom (three days of listening to research projects). We weren’t the only ones who were recovering from Covid, or feared being in person, or for whatever reason didn’t want to make the trip. They opened up the option to everyone, which was super kind of them. About half the cohort was on Zoom.
Tim was feeling much better by the time his quarantine had ended, just in time for us to make the second half of the trip. The bike rental was non-refundable, so we really didn’t want to cancel that one if at all possible. We drove the Mini Cooper (“Coop”) to Arkansas where we visited with his mom, then on up to Madison Wisconsin where we picked up the bike and rode to Marquette Michigan for the start of the rally. The next day we rode to Minnesota where we stayed overnight in International Falls and then on to Grand Portage. Back to Duluth to catch up with the rally. We cut the trip short when we heard about Tim’s mom passing. More on that in the next blog.
Not everyone who has cancer is as fortunate as me. My treatment is keeping the breast cancer at bay. While I still have problems with neuropathy, brain fog, and fatigue (to name a few), living with metastatic breast cancer doesn’t mean I have to sit on the couch and watch television all day. Although it is tempting at times! It is tempting to use cancer as my excuse for doing nothing. Sometimes I do rest, purposefully.
I recently joined a class “Active Living After Cancer,” as a boost to my motivation to stay active. It was really hard right after surgery, and during Covid, but now I’m ready to get back into it. I am reminded of Paul’s words in his second letter to the Corinthians; these are “light and momentary trials.” We are still living life to the fullest.
On our motorcycle trip we looked for famous landmarks, took long walks in the evenings, and ate the local cuisine. In the daytime I used my muscles to stay on the bike. (Check out my next blog for more pictures from our motorcycle trip.) We fought the rain and cold, looked for healthy food options (always followed up by an ice cream of some sort 🤪), and enjoyed hot showers after every day’s ride.
Traveling or not, we often find ourselves sitting in a Panera Bread while working on ideas for future books, professional efforts, writing children’s books, or whatever job Tim has going at the time. I’d say we are pretty active! Nope..we won’t let this darn pandemic get the best of us.
À la prochaine…hasta la próxima vez…until next time!
Two more days and I’ll be switching to Medicare from my safe and secure insurance policy that has brought me thus far. It’s a bit daunting learning all the Medicare language. And because I’m not 65 yet, my options are more limited. Apparently, once I turn 65 I will have more options and insurance will be cheaper. Apparently.
In case you are trying to dance 💃🏻 through this maze as well, maybe this will help you out. Here’s what I have learned so far as it pertains to me.
Medicare has three main parts. Part A covers in-patient, with a $1,550 deductible. Part B covers doctors, tests, and specialists with a monthly premium based on your income, a $233 deductible, then Medicare pays 80% of all costs. Part D covers drugs. (There is a Part C, but that’s basically a combination of A and B in what’s called an Advantage Plan. I’ve been told to steer clear of those, and my doctor isn’t sure they would be covered, so I ruled out Advantage.)
In order to avoid paying the $1,550 deductible for Part A, and the 20% coinsurance for Part B, you have to have a supplemental insurance plan. I wish the letters aligned with the stars, as it can get confusing. Basically, to cover Part A deductibles, you have to get Plan B or higher. To cover the Part B coinsurance, you have to get Plan A (or higher). In Texas, you can only get Plan A if you are under 65. There was some disagreement about this, but I’ve double and triple and quadruple checked. The Medicare.gov website even says State Farm provides Plan G, but in reality they don’t. My local State Farm said they don’t provide any supplements, but it’s probably because she didn’t want to quote $20,000 per year for Plan A. Yikes! 😳😳 No thanks.
I will have to pay Part A $1,550 deductible if ever I go into the hospital. We are praying that doesn’t happen. This last surgery was hopefully the last one for me. I don’t know if I could handle another, to be honest. This is part of the reason we opted to do it now rather than later. If ever I’m in an accident and have to go to the hospital, I may be reaching out to my friends in a GoFundMe account. 🤪😁
All insurance companies provide the exact same supplements. Plan A is Plan A regardless of who provides it. And the doctors take it no matter whose plan it is. Insurance companies can charge whatever they want, however. That may range anywhere from $300 to $1700 per month. So basically, whoever provides the insurance for the lowest premium wins. It is up to the consumer to do the research.
I set out calling multiple insurance companies, then I discovered the Medicare.gov website also lists insurance companies and how much they charge. TransAmerica had the least expensive premium at $336.18, so I sent off the application today, and they confirmed they received it. They are a solid company, with a good reputation, and met my insurance friend’s approval test as well.
Something else I learned. Once I pick an insurance company, I’m pretty much stuck with that company. So I am praying I chose wisely. The reason is because I am currently in what is considered a “one time only guaranteed issue.” I don’t have to pass any medical tests or underwriting questions since I’m new to Medicare. If ever I decided to switch, I would have to go through underwriting. Guess what, I won’t be switching!
Plan D will be through Cigna. After multiple calls to brokers and Medicare, they were the best option at $23.10 per month. You can input your medications into the Medicare.gov website and their formula shows you how much it will cost by different insurance companies. Again, Plan D is the same for all companies, but their cost isn’t necessarily the same. Cigna won. There is a hefty deductible for most companies (which I won’t meet by the end of the year), but it will save me some money over paying for my medications out of pocket.
I kinda chuckled when I chose Cigna, because that’s who currently provides my insurance. They have been really good to me, although they tried to send me out of the MD Anderson network to get my chemo. They won’t have any say in that because infusions fall under Part B, not Part D, since it’s given in the infusion center. I will likely be moving to a mail-order pharmacy for drugs as it is cheaper. Honestly, this seems like it would be easier anyway.
I’m still crossing my fingers and toes as we wait to see if all this pans out the way they say it should. We might have to pay over $500 premiums per month plus deductibles, but at least we won’t be paying $2,500 per month for Cobra any more, in addition to coinsurance. (We still have to pay for Cobra for Tim until the end of the year, but thankfully my part is removed.) I’ll keep you posted as I discover more about this whole Medicare dance that I am now a part of.
Dr. Kovitz, my medical oncologist, called me today. Apparently he spoke with my surgeon and they decided I can go ahead with my infusion on Thursday. The surgeon was following her regular protocol which is to stop all chemotherapy infusions before surgery. But Dr. Kovitz reminded her this is not chemotherapy (even though we call it chemo and it’s infused in the chemo infusion center). It’s immunotherapy. Dr. Kovitz said we really don’t know how long we would have to wait for it to get out of my system anyway. So…we are back on schedule for treatment this week.
Oh, did I forget to tell you I’m scheduled for surgery? 🙄
It’s been a busy week. We helped move our daughter’s family out of their apartment into a storage unit until their next place is ready. They can move in tomorrow. She has been staying with us (and her two kids) in the meantime. The kids are feeling the transition. They are five and three, and they are good at it. 😂 Did I say they can move in tomorrow? 😂🤪😂 She also starts a new job tomorrow. But that’s a whole other story for a different blog.
Surgery, oh yeah.
My colorectal surgeon, Dr. You (not to be mistaken for Dr. Who), called me after the failed polyp procedure. She said we have two options. Since the biopsies did not show cancer (they are precancerous adenomas which may or may not turn into cancer), we can “wait and see.” In other words, go in every year or so and take more biopsies to see if progresses to something more. If it does, we will do surgery then.
OR …
If I “can’t sleep at night” because I’m concerned about it, or I just want to be certain, we can go ahead and do the surgery. Remove part of my colon, appendix, and of course the polyp.
I weighed the options. Hmmm. I don’t like the idea of waiting and watching something grow. We did that with my breast cancer the first time, and look where it got me.
And then Dr. You gave me the blueberry pancake analogy, a/k/a her “caveat.” That sealed the deal for me. After talking with hubby and friends, we all agreed.
What is the blueberry pancake analogy? I’m glad you asked.
Basically, when they do biopsies it’s like pulling pieces from a blueberry pancake. If they find blueberries, we know they exist. However, there is no guarantee there are no blueberries just because they didn’t find any in the biopsy. Her caveat is that. Unless we remove the whole pancake, we don’t know if we missed any blueberries. But don’t worry, she added. There are several stages before it hits the cancer stage. 😳😳
I like blueberries, but not when they are compared to cancerous growths. I didn’t like the idea of the slightest possibility that something could still be lurking underneath this giant thing. The only way to know for sure is to remove the whole pancake, er, I mean, polyp.
Besides, my insurance is changing to Medicare in July and we still don’t know what all that means. All my out of pocket expenses are currently met for the year with my current insurance, so we can let Cigna pay for it.
All that to say…we decided to go ahead and do the surgery. It’s scheduled for Tuesday June 7th at the downtown MD Anderson Cancer Center. I have pre-op in The Woodlands on Friday May 27th, a Covid test and labs on Sunday June 5th, bowel prep (of course), and then I’ll be in the hospital from June 7th until after surgery for 3-5 days (depending on how quickly I poop💩). It looks like recovery is about 6 weeks but she said I should be feeling pretty good after 2-4 weeks.
It’s 1:28 PM and the day is only half over. The morning started with a drive through traffic to MD Anderson in The Woodlands for my 8:00 AM bloodwork. Third Floor.
Then I was off to getting prepped for CT scans of the chest, abdomen, pelvis and whole body bone scan (access port, drink the peach tea contrast, inject the nuclear tracer). First Floor.
A few abnormalities happened to me today, but since I’m used to the process I didn’t panic. A little trouble with blood return. Raise your hand. Make a fist. Lay back. Cough… That did take care of it. In addition, they had too many nuclear medicine tracers in my room. Three to be exact. Fortunately, I had a savvy nurse who quickly figured out which one is mine. Is it a full moon? 🙄🙄
The CT tech took me back a little early, so that cleared up some time between scans to go and eat the oatmeal I had brought with me. I also bought some tea in their café. Second Floor.
I’m pretty good at math, but when the bone scan tech said today was a slow day with about 120 patients, I was quite surprised. They normally have between 150-160 patients every day 😳.) I couldn’t wrap my head around it. They only have the one machine. Mine takes about 15-20 minutes. How do they fit them all in? It’s one of those mysteries I may never know the answer to.
After some humorous comments by the bone scan tech about various people snoring over the loud speaker, I’m pretty sure I fell asleep 🥱. He concurred, but he said he didn’t have any recording to prove it. Whew 😅. First Floor.
I normally do these scans about every four to six months. My oncologist brought me in at the three month mark this time due to some pain in my right ribcage. It comes and goes. It is reminiscent of when and where the cancer started in my left ribcage, so he’s scanning a bit earlier than normal to be certain. I suspect all will be clear, but you never know with this disease.
That took us until noon. We should get the results in the next few days.
They left my port accessed for chemo (immunotherapy). Tim picked me up for lunch, and we left the building. We also got to pop into Circle K and say hello to Elizabeth. It was nice to see her in the middle of the day. She looks tired, but I think she is doing okay. I’m really proud of her for working so hard to keep her family afloat.
I came back early for chemo, with hopes of getting in and out a bit early. I just checked in, and pulled out my computer while I am waiting. I am an hour early, so who knows whether they will call me early or not. Third Floor.
When I opened my computer, I was welcomed by the normal MD Anderson Internet connection. But this time a special announcement came with it. A press release dated today caught my attention. This is just one more reminder of what a wonderful facility I am blessed to be a part of.
MD Anderson just opened a research center in his name, devoted to the work of immunotherapy. If you want to read more about it, click here. Very incredible work they are doing!
Jim Allison is an interesting scientist. They really should make a movie about him. He’s the one who said our immune system can fight cancer, while all the others in the field laughed at his ideas. Well, we all know about immunotherapy now, and how much it has changed the health world. Amazing stuff. He was awarded the first Nobel Peace Prize for his immunotherapy treatment. Totally brilliant.
“Mr. West?”
“Who are you looking for?”
“Mr. West?”
“What’s the first name?” I said this with some degree of hopefulness.
She double-checked. It’s a guy. Rats. Looks like I’ll be waiting a bit longer.
At least they won’t have to poke me again. There’s always an upside.
Whew! Another year is gone, and a New Year has come. 2021 seemed to fly by like a bullet train, especially after the snail’s pace with which we met 2020. We all thought it would be a better year. We had high hopes for 2021. Somehow we thought it would rush in like Superman and save the day.
Well, the pandemic stuck around and even brought some nasty variants. It did seem to have some rough patches, but as I looked back through the year I discovered 21 milestones/achievements/new experiences. Some of it is personal, and some of it we did as a team. Here is my 2021 year in review…
Read the whole Bible using a Bible Plan on YouVersion. At times I fell behind, but I managed to catch up and I DID IT!
Lost some weight–about eleven pounds this year.
Finished in the top tier on Duolingo, and completed a 602 day streak (learning French).
Walked 203 miles (that we counted).
Spent about 40+ nights in the Airstream: north Texas (Grapevine) at the AS workshop, Bridgeport, Lake Whitney, west Texas (Odessa), south Texas (Donna), and the Jetstream RV Resort at NASA, (south Houston).
Took three long trips on my motorcycle, and a fourth on the back of Tim’s. Earned my 100,000 mile patch. Rode over 10,000 miles through 23 states this year alone. We have accomplished our domestic motorcycle bucket list. Time to do some fly and rides!
Served as a CNS officer (editor).
Painted feature walls and upgraded our shower. Turned our guest room into a playroom for the grandchildren. Sold our bikes and reclaimed our garage.
Awarded a research fellowship and attended our first residency at Villanova University.
Bought a Mini Cooper, then traded and upsized to the Countryman.
Our fifth grand baby Mikayla was born! We also learned we are expecting #6! Spent a lot of precious time with the grandkids last year.
Tested positive for Covid-19, Omicron variant. Yucky stuff!
Sat in a DeLorean time machine!
Fostered and rescued a dog.
Tim started a new job, and ended his work with TXM.
Published my first children’s book. We published a second book for sermon notes as well.
Wrote a few songs.
Cooked some new meals.
Watched a Carolina Wren raise her babies.
Completed our first Escape Room.
Big SNOW in Conroe that lasted a whole week in February.
I suppose I could add one more…stayed alive. I have made it to the five year mark since my metastatic breast cancer diagnosis, a day many professionals didn’t think we would see. I’ve already blogged about that, but it is certainly a milestone!
Our theme word for 2022 is “simplify.” We have already begun looking at the calendar and making plans for the new year. I am hopeful this year will be better than the last two. However, looking back on all we have experienced in 2021, I can’t complain.
Forget what happened before…I’m making a new thing.
Here at MD Anderson for my oncology check-up. I was first diagnosed with breast cancer nine years ago this month. The second time (stage 4) I was diagnosed was five years ago this month. Always right before Christmas . I was secretly hoping to avoid any scans before Christmas, but he wants them done before the end of the year, even better since copays start over in January.
I come in to see the doc about every three or four months. Everything is still good right now. He schedules my chem and imaging, and refills my prescriptions. As of now, my blood looks good and imaging is good. It’s been about six months since my last imaging so we will do that before the year ends.
Update: Scans are scheduled for Friday, December 17th. Then, hopefully we will only receive good news Christmas week.
They are always very encouraging whenever I come in here. I love my doctors and all the people who see me at MD Anderson. Every time I come I see a lot of people, including the phlebotomist who draws my blood, the tech who takes my vitals, the nurse who knows me by name and asks lots of personal questions, the physician assistant who checks my heart and lungs, and the medical oncologist. They are like family and friends and they genuinely seem to care. I will be on round 70-something next week, so we’ve been connected for a while now. I am so thankful for my team of experts who are keeping me alive.
God is not a God of statistics…
FIVE years! FIVE! I’ve lived to see five more Christmases. We made it! God is good. My husband has been there beside me the whole time, and I couldn’t have done it without his support. To put it into perspective, only 20-30% of women who are diagnosed MBC live five years, with the average being about three. The numbers are hard to track, because there isn’t a good tracking system nationwide. So that’s the best we know.
Also as a point of interest (and a shameless plug), “only 2%-5% of funds raised for breast cancer research is focused on research for the already metastasized patient.” Much more research needs to be done to better understand this disease. Metavivor is my favorite organization, since 100% their donated funds go to research.
As a friend of ours reminded us nine years ago this month after I was first diagnosed, “God is not a God of statistics.” Only He knows the future. He is the supernatural healer and certainly defies the odds. I trust Him.
A few weeks ago I shared the sad story of Midnight, our daughter’s puppy who we fostered for five days. Due to their apartment restrictions and allergies in the family, they could no longer keep him. The shelter was closed when they moved, so we let them put him in our back yard until he could be taken to the shelter.
He was such a sweet puppy, only ten months old, and we fell in love with him. I became much more attached than I imagined I could. You can read more in my former blog about Midnight. We did have fun with him while we had him. He proved to be fast, smart, sweet, and he could jump! (Our fan remote which we left on the table has seen better days 🙄.)
A short video of our fun with Midnight.
It was time for our big bike trip to Lake Michigan, so we could no longer keep him in our yard. Also, we have too much stress to have a pet given my diagnosis and all our commitments. After many pleas, multiple connections, and no results, we took him to the Conroe animal shelter. I had heard horrible things about them, and I experienced it as well. However, we were left with no option but to leave him there and pray for this dear dog’s life.
I am so happy to reporthe has been rescued!A rescue organization called Forgotten Dogs of the Fifth Ward tagged him in less than a week to be saved. They found him a foster home not far from us. He got a virus in the shelter, so they gave him some medicine before he was to go home. They x-rayed a leg. They gave him shots. And, they neutered him. Many thanks to Kelle Mann and the Forgotten Dogs for saving his life.
The new owner is going to foster him until a forever home can be found, but I suspect they may turn into his forever home. They built him a new kennel in their air conditioned and heated garage where he will stay at night. They also have a great set-up outside for the dogs. Watch the video at the end for a great invention to keep dogs hydrated!
It took a few weeks for them to get him due to the virus, vet visits, and then they went on vacation. I waited until he was in his new home to blog about it as I was on pins and needles hoping it would go through. She kept updating me with information about him, and it was good to hear from her.
While they were on vacation, he stayed at the Kickapoo Ranch where he was trained. (Apparently he was running over and knocking down the older, little pugs at their home🤪, so he needed some attention.) The new owners also went for training, just before they brought him home on October 5th.
He has a new name!
Midnight is now “Blackberry.” I love that name, and so does Elizabeth. She was happy to see the updates and hear he is doing so well. It is not uncommon for new owners to give a pet a new name. It is unlike people who are very attached to their names. Dogs respond to whatever prompt they are given (and we given dogs many nicknames anyway).
The Bible talks about names. People were assigned a new name as a sign of hope, new beginnings, and new blessings. Abram was changed to Abraham, Sarai became Sarah, Jacob became Israel, and Simon was called Peter by Jesus. Blackberry is filled with hope for the future and blessings. I like that.
Here is a brief conglomeration of the pictures and movies sent to me by the new owner. It was so good to keep up and see he is happy and healthy. I love happy endings! ❤️❤️ I thought you might as well.
And now he is Blackberry! Getting trained and settled into his new home.
. I was secretly hoping to avoid any scans before Christmas, but he wants them done before the end of the year, even better since copays start over in January. 